End-of-Life Care Publications

2013

Care Experiences of Managed Care Medicare Enrollees Near the End of Life — February 4

2012

Development of a Prognostic Model for Six-Month Mortality in Older Adults with Declining Health — March 1

Patients Value Metastatic Cancer Therapy More Highly Than Is Typically Shown Through Traditional Estimates — April 1

2011

Communication with Families Facing Life-Threatening Illness: A Research-Based Model for Family Conferences — April 1

Evaluating a Palliative Care Intervention for Veterans: Challenges and Lessons Learned in a Longitudinal Study of Patients with Serious Illness — March 14

Hospital Spending and Inpatient Mortality: Evidence from California: An Observational Study — February 1

Missed Opportunities: Use of an End-of-Life Symptom Management Order Protocol Among Inpatients Dying Expected Deaths — April 1

Quality of End-of-Life Care for Patients with Advanced Cancer in an Academic Medical Center — April 1

2010

Hospice Use and High-Intensity Care in Men Dying of Prostate Cancer — January 1

Physician Factors Associated with Discussions About End-of-Life Care — January 1

Provider Communication and Patient Understanding of Life-Limiting Illness and Their Relationship to Patient Communication of Treatment Preferences — January 1

The Quality of Care Provided to Hospitalized Patients at the End of Life — January 1

Quality of End-of-Life Care in Low-Income, Uninsured Men Dying of Prostate Cancer — January 1

2009

Demographic and Social Characteristics and Spending at the End of Life — January 1

A Framework for Assessing Quality Indicators for Cancer Care at the End of Life — January 1

Heart Failure: The Hidden Problem of Pain — January 1

Hospice and Emergency Room Use By Disadvantaged Men Dying of Prostate Cancer — January 1

The Impact of Late-Life Parental Death on Adult Sibling Relationships: Do Parents' Advance Directives Help or Hurt? — January 1

Inpatient Hospital Services: An Update on Services Provided Under California's Workers' Compensation Program — January 6

The Medicare Hospice Payment System: A Consideration of Potential Refinements — January 1

2008

Advance Care Planning Among the Oldest Old — January 1

Age and Gender Differences in Medicare Expenditures and Service Utilization at the End of Life for Lung Cancer Decedents — January 1

Evidence-based Recommendations for Information and Care Planning in Cancer Care — January 1

Evidence for Improving Palliative Care at the End of Life: A Systematic Review — January 1

Improving Generalist End of Life Care: National Consultation with Practitioners, Commissioners, Academics, and Service User Groups — January 1

Medicare HMO Impact on Utilization at the End of Life — January 1

Paying the Price at the End of Life: A Consideration of Factors That Affect the Profitability of Hospice — September 1

Progress in Quality-of-Care Research and Hope for Supportive Cancer Care — January 1

Promoting Efficiency and Quality of Care in the Hummer Health Care System — January 1

A Systematic Review of Satisfaction with Care at the End of Life — January 1

Use of Advance Directives for Nursing Home Residents in the Emergency Department — January 1

2007

Acculturation and End-of-Life Decision Making: Comparison of Japanese and Japanese-American Focus Groups — January 1

Age and Gender Differences in Medicare Expenditures at the End of Life for Colorectal Cancer Decedents — January 1

Ensuring Palliative Medicine Availability: The Development of the IAHPC List of Essential Medicines for Palliative Care — January 1

Getting Services Right for Those Sick Enough to Die — January 1

The New York City Palliative Care Quality Improvement Collaborative — January 1

Quality Indicators for Palliative and End-of-Life Care in Vulnerable Elders — January 1

A Systematic Review of Measures of End-of-Life Care and Its Outcomes — January 1

2006

Cancer Care Quality Measures: Symptoms and End-of-Life Care — January 1

Health Care Policy Issues in End-of-Life Care — January 1

The Medicare Hospice Payment System: A Preliminary Consideration of Potential Refinements — June 21

Prescription Drug Spending for Medicare+Choice Beneficiaries in the Last Year of Life — January 1

Quality Measures for Symptoms and Advance Care Planning in Cancer: A Systematic Review — January 1

Redefining and Reforming Health Care for the Last Years of Life — May 16

2005

Living Long in Fragile Health: The New Demographics Shape End of Life Care — January 1

2004

The 2004 Presidential Candidates' Platforms on Serious Chronic Illness and Palliative Care — January 1

Accommodating Ethnic Diversity: A Study of California Hospice Programs — January 1

Medicare Program Expenditures Associated with Hospice Use — January 1

2003 & Older

Advance Care Planning for Fatal Chronic Illness: Avoiding Commonplace Errors and Unwarranted Suffering — January 1, 2003

Charity for the Dying: Who Receives Unreimbursed Hospice Care? — January 1, 2003

Describing Death in America: What We Need to Know — January 1, 2003

Disaster Planning: Making Decisions in Advance for Very Sick Patients — January 1, 2003

Living Well at the End of Life: Adapting Health Care to Serious Chronic Illness in Old Age — January 1, 2003

The Quality of Medical Care Provided to Vulnerable Community-Dwelling Older Patients — January 1, 2003

The 107th Congress' Legislative Proposals Concerning End-of-Life Care — January 1, 2002

Acculturation of Attitudes Toward End-of-Life Care: A Cross-Cultural Survey of Japanese Americans and Japanese — January 1, 2002

Age and Gender Differences in Health Care Utilization and Spending for Medicare Beneficiaries in Their Last Years of Life — January 1, 2002

The Center for Patient Safety at the End of Life: Seeking Reliability and Safety in the Care of Individuals Nearing the End of Life with Serious Illness — January 1, 2002

A Commentary: Where to Live While Dying — January 1, 2002

Lessons from the End of Life in the Program of All-Inclusive Care of the Elderly — January 1, 2002

Quality Improvement in End-of-Life Care: Small-Scale Innovations Can Make a Dramatic Difference — January 1, 2002

Quality of Life at the End of Life: Trends in Patients with Metastatic Prostate Cancer — January 1, 2002

Reforming Care for Persons Near the End of Life: The Promise of Quality Improvement — January 1, 2002

Systems of Care: Future Reform — January 1, 2002

Vulnerable People: Practical Rejoinders to Claims in Favor of Assisted Suicide — January 1, 2002

End-of-life Discussions and Preferences Among Persons with HIV — January 1, 2001

Financing of Care for Fatal Chronic Disease: Opportunities for Medicare Reform — January 1, 2001

Medicare Beneficiaries' Costs of Care in the Last Year of Life: End-of-Life Costs Are Only Slightly Higher for Persons Who Died Than for Survivors with Similar Characteristics — January 1, 2001

Patients with Eventually Fatal Chronic Illness: Their Importance Within a National Research Agenda on Improving Patient Safety and Reducing Medical Errors — January 1, 2001

Planning Medical Services for the End of Life — January 1, 2001

Providing Care at the End of Life, Do Medicare Rules Impede Good Care? A Study of End-of-Life Care Providers Reveals Some Shortcomings — January 1, 2001

Quality Indicators for End-of-Life Care in Vulnerable Elders — January 1, 2001

Reliable, High-Quality, Efficient End-of-Life Care for Cancer Patients: Economic Issues and Barriers — January 1, 2001

Serving Patients Who May Die Soon and Their Families: The Role of Hospice and Other Services — January 1, 2001

Age Differences in Care Practices and Outcomes for Hospitalized Patients with Cancer — January 1, 2000

Age-related Differences in Care Preferences, Treatment Decisions, and Clinical Outcomes of Seriously Ill Hospitalized Adults: Lessons from SUPPORT — January 1, 2000

Communication and Decision-Making in Seriously Ill Patients: Findings of the SUPPORT Project — January 1, 2000

Description of the SUPPORT Intervention — January 1, 2000

Dying with Acute Respiratory Failure or Multiple Organ System Failure with Sepsis — January 1, 2000

Dying with Cancer: Patients' Function, Symptoms, and Care Preferences as Death Approaches — January 1, 2000

Dying with End Stage Liver Disease with Cirrhosis: Insights from SUPPORT — January 1, 2000

Dying with Lung Cancer or Chronic Obstructive Pulmonary Disease: Insights from SUPPORT — January 1, 2000

The Effect of Nutritional Supplementation on Survival in Seriously Ill Hospitalized Adults: An Evaluation of the SUPPORT Data — January 1, 2000

The Effects of Patient Race on Outcomes in Seriously Ill Patients in SUPPORT: An Overview of Economic Impact, Medical Intervention, and End-of-Life Decisions — January 1, 2000

Elderly Persons' Last Six Months of Life: Findings from the Hospitalized Elderly Longitudinal Project — January 1, 2000

Family Satisfaction with End-of-Life Care in Seriously Ill Hospitalized Adults — January 1, 2000

Handling Conflict in End-of-Care — January 1, 2000

Improving Care for the End of Life: A Sourcebook for Health Care Managers and Clinicians — January 1, 2000

Ineffectiveness of the SUPPORT Intervention: Review of Explanations — January 1, 2000

Insights About Dying from the SUPPORT Project — January 1, 2000

Learning to Care for People with Chronic Illness Facing the End of Life — January 1, 2000

Pain and Suffering in Seriously Ill Hospitalized Patients — January 1, 2000

Patients Who Want Their Family and Physician to Make Resuscitation Decisions for Them: Observations from SUPPORT and HELP — January 1, 2000

Physician Understanding of Patient Resuscitation Preferences: Insights and Clinical Implications — January 1, 2000

Quality Improvements in End of Life Care: Insights from Two Collaboratives — January 1, 2000

Quality of Life at the End of Life — January 1, 2000

Rethinking Fundamental Assumptions: SUPPORT's Implications for Future Reform — January 1, 2000

Sick to Death and Not Going to Take It Anymore! — January 1, 2000

Withholding Versus Withdrawing Life-Sustaining Treatment: Patient Factors and Documentation Associated with Dialysis Decisions — January 1, 2000

Handbook for Mortals: Guidance for People Facing Serious Illness — January 1, 1999

Patient Age and Decisions to Withhold Life-Sustaining Treatments from Seriously Ill, Hospitalized Adults — January 1, 1999

Depressed Mood and Survival in Seriously Ill Hospitalized Adults — January 1, 1998

Differences Across Payors in Charges for Agency-Based Home Health Services: Evidence from the National Home and Hospice Care Survey — January 1, 1998

Influence of Patient Preferences and Local Health System Characteristics on the Place of Death — January 1, 1998

Outcomes, Preferences for Resuscitation, and Physician-Patient Communication Among Patients with Metastatic Colorectal Cancer — January 1, 1998

Patient Empowerment and Feedback Did Not Decrease Pain in Seriously Ill Hospitalized Adults — January 1, 1998

Physician Experience Caring for Dying Patients and Its Relationship to Patient Outcomes — January 1, 1998

Relationship Between Cancer Patients' Predictions of Prognosis and Their Treatment Preferences — January 1, 1998

Changes Over Time in the Use of Do Not Resuscitate Orders and the Outcomes of Patients Receiving Them — April 1, 1997

Outcomes and Cost-Effectiveness of Initiating Dialysis and Continuing Aggressive Care in Seriously Ill Hospitalized Adults — January 1, 1997

Patients with DNR Orders in the Operating Room: Surgery, Resuscitation, and Outcomes — January 1, 1997

Perceptions by Family Members of the Dying Experience of Older and Seriously Ill Patients — January 1, 1997

Prognoses of Seriously Ill Hospitalized Patients on the Days Before Death: Implications for Patient Care and Public Policy — February 1, 1997

Choices of Seriously Ill Patients About Cardiopulmonary Resuscitation: Correlates and Outcomes — February 1, 1996

Factors Associated with Change in Resuscitation Preference of Seriously Ill Patients — July 22, 1996

Factors Associated with Do-Not-Resuscitate Orders: Patients' Preferences, Prognoses, and Physicians' Judgments — August 15, 1996

Is Economic Hardship on the Families of the Seriously Ill Associated with Patient and Surrogate Care Preferences? — January 1, 1996

Accurate Prognostications of Death: Opportunities and Challenges for Clinicians — September 1, 1995

Preferences for Cardiopulmonary Resuscitation: Physician-Patient Agreement and Hospital Resource Use — January 1, 1995

Do Formal Advance Directives Affect Resuscitation Decisions and the Use of Resources for Seriously Ill Patients? — January 1, 1994

The Impact of Serious Illness on Patients' Families — January 1, 1994

Prior Capacity of Patients Lacking Decision Making Ability Early in Hospitalization: Implications for Advance Directive Administration — October 1, 1994

Prognosis-based Futility Guidelines: Does Anyone Win? — January 1, 1994

A Randomised Controlled Trial of Hospice Care — January 1, 1984

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Featured Research Brief

Cover: Redefining and Reforming Health Care for the Last Years of Life

Redefining and Reforming Health Care for the Last Years of Life

This research brief summarizes findings on actions that can be taken to shape the U.S. health care system into one that helps Americans live out their final years comfortably, with a care system that is reliable, cost-effective, and sustainable.