HIV Patient-Assessed Report of Status and Experience (HIV-PARSE)

The HIV Patient-Assessed Report of Status and Experience (HIV-PARSE) survey instrument is a self-administered patient survey developed by RAND and the University of California at San Diego. It is designed to assess patient outcomes in clinical trials of therapies for treating HIV-infected patients.

HIV-PARSE Survey Instrument

Measuring Patient-Reported Health Status in Advanced HIV Disease: HIV-PARSE Survey Instrument

Interest in using patient reported health status assessments as an outcome in clinical trials of therapies for HIV disease is increasing. This document presents such an assessment, the HIV-PARSE survey instrument. It describes the purpose and development of the instrument, documents field experience and psychometric properties, and provides scoring rules. The actual instrument is included, in English and Spanish. These measures prove to be highly reliable and practical in the context of a clinical trial.

The survey instrument is a baseline questionnaire that contains sections measuring symptoms, disability, utilization, and health status and functioning. The responses are assessed using a version of the Medical Outcomes Study 36-Item Short Form Health Survey (SF-36) measure that has been modified for HIV patients.