Kidney Disease Quality of Life Instrument (KDQOL)

Instruments and Scoring Programs Downloads

All of the surveys and tools are public documents, available without charge (for non-commercial purposes). Please see our FAQ page for more information.

The KDQOL-SF™ v1.3 Survey

  • Instrument only (does not include optional demographic items - see scoring manual below for these).

  • Scoring manual or .zip version (version 1.3; includes an optional set of suggested demographic items):
    Hays, R.D., et. al. (1997). Kidney Disease Quality of Life Short Form (KDQOL-SF™), Version 1.3: A Manual for Use and Scoring. Santa Monica, CA: RAND, P-7994.

Excel spreadsheet to score the KDQOL-SF™ 1.3:

The KDQOL-36™ Survey

The KDQOL-36™ is a short form that includes the SF-12 as generic core plus the burden of kidney disease, symptoms/problems of kidney disease, and effects of kidney disease scales from the KDQOL-SF™v1.3. A crosswalk between the two instruments can be found on our FAQ page.

Items 1-12: SF-12
Items 13-16: Burden of kidney disease (k=4)
Items 17-28: Symptoms/problems (k=12)
Items 29-36: Effects of kidney disease (k=8)

  • Instrument only
    (see the KDQOL-SF™v1.3 scoring manual for optional demographic items and the description of scoring for portions of the KDQOL-SF™v1.3 that are relevant to the KDQOL-36™)

Scoring the KDQOL-36™

See the KDQOL-SF™v1.3 scoring manual for a description of scoring for portions of the KDQOL-SF™v1.3 that are relevant to the KDQOL-36™

The KDQOL Working Group developed a stand alone Excel scoring tool to help with the scoring of the KDQOL-36™.

Translated documents (non-U.S. English)

Please note: the following translations have been created wholly by the listed contributors, and have not been evaluated or reviewed by RAND. RAND is providing the translations as a courtesy, and is not responsible for any inaccuracies or errors in the documents below.

Language and country PDF/DOC Download With thanks to contributors:
Arabic KDQOL-SF 1.3 (.pdf) Dr. Samar Abd ElHafeez
Bengali (Bangladesh) KDQOL-36 (.doc)
KDQOL-36 (.pdf)
Amgen, Inc. and MAPI Institute
Cantonese Chinese (Hong Kong) KDQOL-36 (.doc)
KDQOL-36 (.pdf)
Amgen, Inc. and MAPI Institute
Cantonese Chinese (Hong Kong) KDQOL-24 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Chinese (Hong Kong) KDQOL 1.3 Dr. Angela Wang
Czech KDQOL 1.2 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Danish KDQOL 1.3 (incl demographic items) Stig Molsted, PT
Inge Eidemak, MD, PhD.
Danish KDQOL 1.2 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Dutch KDQOL 1.2 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
English (U.K.) KDQOL 1.2 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Filipino (Philippines) KDQOL 1.3 Dr. Rommel P. Bataclan
VRP Medical Center, Philippines
French (France) KDQOL 1.2 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
French (France) KDQOL 1.2 Alain LePlege
French Creole (Haiti) KDQOL-36 Amgen, Inc., MAPI Institute and MEI
contact person: Dori Schatell, MS
German (Germany) KDQOL 1.2 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Greek (Greece) KDQOL Brian Bresnahan, and
Sonya Eremenco, M.A.
Hebrew KDQOL-24 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Hungarian (Hungary) KDQOL Brian Bresnahan, and
Sonya Eremenco, M.A.
Italian (Italy) KDQOL 1.3 Dr. Catherine Klersy
www.sanmatteo.org
Iranian (Iran) KDQOL 1.3
Related publication
Amir H. Pakpur, PhD
Department of Public Health
Qazvin University of Medical Sciences
Qazvin, Iran
Korean (Korea) KDQOL 1.3 Sehyun Kim, PhD,
Kyung Hee University
Korean (Korea) KDQOL-36 (.doc)
KDQOL-36 (.pdf)
Amgen, Inc. and MAPI Institute
Malay (Singapore) KDQOL-24 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Mandarin Chinese KDQOL-24 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Mandarin Chinese (China) KDQOL-36 (.doc)
KDQOL-36 (.pdf)
Amgen, Inc. and MAPI Institute
Polish (Poland) KDQOL 1.2 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Polish (Poland) KDQOL-SF Brian Bresnahan
Sonya Eremenco, M.A.
Portuguese (Brazil) KDQOL 1.3 (.pdf)
KDQOL 1.3 (.doc)
Dr. Priscila Duarte
Portuguese (Brazil) KDQOL 1.3 (que esta na test) Dr. Priscila Duarte
Portuguese (Portugal) KDQOL 1.3 Dr. Pedro Lopes Ferreira
http://www4.fe.uc.pt/pedrof
Russian (Russia) KDQOL 1.3 Dr. Irina Vassilieva
Spanish (Spain) Provided as is without supporting documentation.
KDQOL-SF
Jordi Alonso, MD, PhD
http://bibliopro.imim.es/
Spanish (U.S.) KDQOL 1.3 Benjamin Arnold, M.A.
Spanish (U.S.) KDQOL-36 MEI adaptation of ENH's Spanish KDQOL 1.3 version (Benjamin Arnold)
Swedish KDQOL 1.2 Marie-Pierre Emery, M.Sc., Director
MAPI Institute
Turkish (Turkey) KDQOL-36 Prof. Dr. Aysegul Yildirim
Dr. Betul Ogutmen
Marmara University

KDQOL-35 symptom list translations

Provided courtesy of Cèline Perriolat and MAPI Institute

Country/Language File name & type Operating System/Software
U.S. English (original) KDQOL-35-Symptom List_TS1.0_eng-USori.doc WIN XP/Word 2003
Dutch (Belgium) KDQOL-35-Symptom List_TS1.0_dut-BE.doc
KDQOL-35-Symptom List_TS1.0_dut-BE.pdf
WIN XP/Word 2003
Adobe Acrobat 7.0
French (Belgium) KDQOL-35-Symptom List_TS1.0_fre-BE.doc
KDQOL-35-Symptom List_TS1.0_fre-BE.pdf
WIN XP/Word 2003
Adobe Acrobat 7.0
French (France) KDQOL-35-Symptom List_TS1.0_fre-FR.doc
KDQOL-35-Symptom List_TS1.0_fre-FR.pdf
WIN XP/Word 2003
Adobe Acrobat 7.0
French (Switzerland) KDQOL-35-Symptom List_TS1.0_fre-CH.doc
KDQOL-35-Symptom List_TS1.0_fre-CH.pdf
WIN XP/Word 2003
Adobe Acrobat 7.0
German (Switzerland) KDQOL-35-Symptom List_TS1.0_ger-CH.doc
KDQOL-35-Symptom List_TS1.0_ger-CH.pdf
WIN XP/Word 2003
Adobe Acrobat 7.0
Italian (Italy) KDQOL-35-Symptom List_TS1.0_ita-IT.doc
KDQOL-35-Symptom List_TS1.0_ita-IT.pdf
WIN XP/Word 2003
Adobe Acrobat 7.0
Spanish (Spain) KDQOL-35-Symptom List_TS1.0_spa-ES.doc
KDQOL-35-Symptom List_TS1.0_spa-ES.pdf
WIN XP/Word 2003
Adobe Acrobat 7.0
Spanish (U.S.) KDQOL-35-Symptom List_TS1.0_spa-US.doc
KDQOL-35-Symptom List_TS1.0_spa-US.pdf
WIN XP/Word 2003
Adobe Acrobat 7.0