The trend within health care services toward remote care and self-management for people with multiple sclerosis has not included adequate support to carers. Greater investment to support the needs of carers could support the informal care they provide, as well as the carer as an individual.
Unpaid caregivers have been a critical part of the functioning U.S. economy, serving as the backbone of the health system, since long before the pandemic started. Adding them to the American Rescue Plan was an important step, but even after the pandemic is over, their financial security will need long-term protection.
One in every five American adults is caring for a loved one in need. Too often, they have to fight to make their voices heard in a health care system that doesn't always see them as the partners in care they can be. More could be done to integrate them into patients' health care teams.
As modern living is changing during this pandemic, so is assisted living. Already, many of us are facing difficult decisions about whether someone we know should stay in an assisted living facility or be taken out due to the coronavirus crisis. If you're in the position to bring someone to hunker down with you, is it even a good idea?
Recent shifts in health care practices have left family caregivers increasingly responsible for medical tasks. Given family caregivers' central role in medical care, there are efforts underway to improve family caregiver integration into the health care team, but there are barriers to effective integration and engagement.