Building Data Capacity to Study Health Equity for Patient Centered Outcomes Research

Group of silhouettes of people of different genders and abilities against a black background, image by smartboy10/Getty Images

Image by smartboy10/Getty Images

The Office of the Assistant Secretary for Planning and Evaluation (ASPE), which coordinates across federal health programs to build data capacity for patient-centered outcomes research (PCOR), aims to bring together experts from across multiple health sciences research disciplines to examine needs and opportunities to develop data capacity specific to PCOR studies and health equity. HHS has published several resources to help support understanding of social factors associated with health equity, including the U.S. Playbook to Address Social Determinants of Health, a Call to Action to Address Health Related Social Needs, and a Medicaid and CHIP Health-Related Social Needs Framework. Data and research that help understand the role that social and economic conditions play in peoples’ health outcomes and wellbeing will increase evidence that helps to advance health equity. To draw attention to these issues, ASPE will sponsor a call for papers and host a one-day, in-person symposium for presentations of the invited papers and to hold moderated discussions. Authors of papers presented at the symposium will be eligible to submit manuscripts for peer-review and potential for publication in a supplement to the journal Medical Care.

Symposium and Journal Supplement on Data Capacity for PCOR

The goal of the symposium is to promote research that can inform efforts to advance health equity, ensuring that all individuals—regardless of their race/ethnicity, gender identity, sexual orientation, disability, socioeconomic status/social circumstances, geography, preferred language—have optimal opportunities to attain the best health possible. This research depends on the availability of demographic, socioeconomic, and environmental data that can be linked with information on health status and health care and methods for using these data to improve understanding of the effects of non-medical factors on disparities and inequities in health. The specific themes of the symposium will be identified from consultations with experts and from submissions of research papers.

View the guidelines for submission of abstracts for the symposium and journal supplement for more information on requirements. Based on review of submitted abstracts, ASPE will invite a select group of authors to develop full paper manuscripts to present at the symposium to be held in Washington D.C. in December 2024. All symposium manuscripts will be considered for publication in a journal supplement in Medical Care.