Symposium on Building Data Capacity to Study Economic Outcomes for Patient-Centered Outcomes Research

Image by Haley Okuley/RAND

The Assistant Secretary for Planning and Evaluation (ASPE), with support from RAND, held a scientific symposium and is compiling an accompanying special issue in the journal Medical Care, focused on understanding and advancing the ways in which patient-centered economic data can be collected, linked, and analyzed for PCOR studies.

About the Symposium

In 2019, the PCOR Trust Fund was reauthorized for ten years and the scope of patient outcomes was expanded to include “potential burdens and economic impacts of the utilization of medical treatments, items, and services on different stakeholders and decision-makers respectively. These potential burdens and economic impacts include medical out-of-pocket costs, including health plan benefit and formulary design, non-medical costs to the patient and family, including caregiving, effects on future costs of care, workplace productivity and absenteeism, and healthcare utilization.”

With this expanded scope, there is a renewed opportunity and funding to build and strengthen data capacity for PCOR studies – improving the availability, quality, and accessibility of data on economic variables as well as the analytic resources needed to support the study of economic impacts.

To advance this important aspect of PCOR data capacity, the Assistant Secretary for Planning and Evaluation (ASPE), with support from RAND, conducted a scientific symposium and is compiling an accompanying special issue in the journal Medical Care, focused on understanding and advancing the ways in which patient-centered economic data can be collected, linked, and analyzed for PCOR studies.

During the symposium, authors presented papers related to patient-centered economic outcomes and attendees had the opportunity to provide feedback and commentary.