HIV Cost and Services Utilization Study (HCSUS)

The HIV Cost and Services Utilization Study (HCSUS) includes multi-item measures of physical functioning, role functioning, pain, general health perceptions, social functioning, energy, and emotional well-being. It also included single-item measures of disability days, overall health, and overall quality of life.

Available documents:

Description of survey and scoring instructions

Survey instrument

All HCSUS questionnaires

Health-related quality of life in patients with Human Immunodeficiency Virus Infection in the United States: Results from the HIV Cost and Services Utilization Study — 2000

Hays, R. D., Cunningham, W. E., Sherbourne, C. D., Wilson, I. B., Wu, A. W., Cleary, P. D., McCaffrey, D. F., Fleishman, J. A., Crystal, S. C., Collins, R., Eggan, F., Shapiro, M. F., & Bozzette, S. A.

American Journal of Medicine, 108, 714-722. 2000.

Item Response Theory and Health Outcomes Measurement in the 21st Century — 2000

Hays, R. D., Morales, L. S., & Reise, S. P.

Medical Care, 38 (Suppl.), II-28-II-42. 2000.

Associations of psychiatric conditions with health-related quality of life in persons with HIV infection — 2000

Sherbourne C.D., Hays R.D., Fleishman J.A., Vitiello, B., Magruder, K. M., Bing, E. G., McCaffrey, D., Burnam, A., Longshore, D., Eggan, F., Bozzette, S. A., & Shapiro, M.F.

American Journal of Psychiatry, 157, 248-254. 2000.