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Journal Article

Nov 8, 2023

Playing God? Media Coverage of CRISPR in the United States

Review of online and television news sources in the United States determined that coverage of CRISPR remained ambiguous and infrequent, indicating media have not established the salience of CRISPR to a degree that engages the public or policymakers.
Blog

Feb 28, 2023

RAND President and CEO Presenting to House Permanent Select Committee on Intelligence

RAND President and CEO Jason Matheny appeared on February 28, 2023, before the House Permanent Select Committee on Intelligence. His remarks covered advances in synthetic biology and artificial intelligence and their potential impact on national security.
Commentary

Jan 30, 2023

The Confluence of Brain and Machine May Require Multi-Sectoral Regulation to Maximise Its Gains

As the commercialization of brain-computer interfaces expands, it would be prudent for international policymakers to consider how this technology should be regulated, in order to reap its benefits and minimize its risks.
Journal Article

Feb 10, 2022

Members of the Public in the USA, UK, Canada and Australia Expressing Genetic Exceptionalism Say They Are More Willing to Donate Genomic Data

This paper examines how acceptance of data sharing pertains to the perceived similarities and differences between DNA and other forms of personal data.
Journal Article

Feb 10, 2022

Demonstrating Trustworthiness When Collecting and Sharing Genomic Data: Views Across 22 Countries

We examine how participants from 22 countries perceived the relative value of measures to demonstrate the trustworthiness of those using donated DNA and/or medical information.
Journal Article

Feb 8, 2022

Return of Genomic Results Does Not Motivate Intent to Participate in Research for All: Perspectives Across 22 Countries

The aim of this study was to determine how attitudes toward the return of genomic research results vary internationally.
Commentary

Jan 21, 2021

Who Gets Care When Hospitals Are Overwhelmed? Clear Policies Are Often Lacking

As COVID-19 cases and hospitalizations surge to new highs, states, health systems, and the public continue to need clarity on health care resource allocation policy. A RAND checklist provides clear and consistent criteria for structuring such difficult decisions.
Journal Article

Jan 7, 2021

From "Informed" to "Engaged" Consent: Risks and Obligations in Consent for Participation in a Health Data Repository

This paper focuses on research stakeholders' views of a model of consent appropriate to biobanking and research infrastructure initiatives like the AoURP and Project Baseline that entail long-term storage and undetermined future research use of multiple types of health data.
Report

Jun 18, 2020

Health Care Resource Allocation Decisionmaking During a Pandemic

The Core Guidance Checklist was created from a discussion process with bioethicists, health system leaders, clinicians, patient advocates, and representatives of communities affected by COVID-19 to improve resource allocation decisionmaking.
Report

Jul 31, 2019

Profile of Institutional Review Board Characteristics Prior to the 2019 Implementation of the Revised Common Rule

This report details the results of a survey of institutional research boards (IRBs) to obtain baseline information on their demographics and their attitudes about their IRBs and the likely effects of proposed changes to the Revised Common Rule.
Commentary

Feb 21, 2019

Biology, in the Language of the People

As technology and the ability to gather ever-growing amounts of data move further into the realms of biology and human performance, communication and transparency become increasingly important. Experts should consider whether they are using the words, examples, and models that connect with a broad audience most effectively.
Commentary

Jan 10, 2019

Ethics of Germline Editing Must Keep Up with Technology

Mainstream interest in genome editing is now surging. If this research is to go forward, the science should be well understood by those conducting the research. Best practices and the highest scientific standards should be employed to limit risks and prevent unintended consequences.

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