Caregivers

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Adults caring for elderly parents, parents caring for children with special needs, family members and friends caring for veterans: Americans spend billions of hours each year providing emotional and physical support to their loved ones. RAND research explores the effects of caregiving duties on these individuals, how policy addresses their needs, and the broader social and economic impact of caregiving on people, communities, and organizations.

  • Closeup of two peoples' hands holding each other, photo by Obencem/Getty Images

    Essay

    Giving Family Caregivers a Voice

    Mar 10, 2021

    One in every five American adults is caring for a loved one in need. Too often, they have to fight to make their voices heard in a health care system that doesn't always see them as the partners in care they can be. More could be done to integrate them into patients' health care teams.

  • Older man and woman sitting on a bench at an assisted living community, photo by monkeybusinessimages/Getty Images

    Commentary

    Learning from Existing Novel Approaches to Solving the Adult Social Care Crisis Is Better Than Reinventing the Wheel

    Oct 14, 2020

    The growing gap in the UK between the need for social care for older people and the provision of support arises not only from a crisis of funding, but also from a failure to learn from what is already being done well. Closing the gap might be achieved by learning from creative approaches already being tried and then implementing them.

Explore Caregivers

  • Journal Article

    Journal Article

    A Double Safety Net? Understanding Interactions Between Disability Benefits, Formal Assistance, and Family Support

    This work brings together perspectives on household adjustments in response to a major health shock in the U.S. It concludes that the family plays a key role in insuring against health shocks, and that informal and formal assistance are imperfect substitutes for one another.

    Feb 7, 2020

  • U.S. President Donald Trump prepares to deliver his third State of the Union address in Washington, D.C., February 4, 2020, photo by Doug Mills/Pool via Reuters

    Blog

    State of the Union 2020: Insights from RAND

    The final State of the Union address of President Trump's four-year term may be viewed through the lens of the unprecedented circumstances surrounding the evening. But the speech touched on a range of policy challenges that will remain, regardless of how politics play out in 2020.

    Feb 5, 2020

  • One doctor walking into a room to meet another doctor, illustration by Malte Müller

    Essay

    Giving Patients a Voice in Medical Guidelines

    Clinical guidelines are the user manuals of modern medicine. They can dictate insurance coverage and help hospitals set quality standards. Yet they often lack the perspective of those who care the most about good treatment: patients and their caregivers. Researchers are working to change that.

    Dec 31, 2019

  • Blog

    How Americans Get the News, Iran, Caregiving: RAND Weekly Recap

    This weekly recap focuses on how Americans consume the news, U.S.–Iranian relations, how federal disability payments help caregivers, and more.

    Dec 13, 2019

  • A young African American woman helping her father using a walker, photo by kali9/Getty Images

    News Release

    Federal Disability Payments Encourage More Caregiving Assistance from Family Members

    Federal disability benefits can lead to increases in other support for beneficiaries, such as in-kind assistance from adult children. They also increase the likelihood that children are paid for their in-kind assistance and enable children who provide that assistance to reduce the amount that they work.

    Dec 10, 2019

  • Family caregiver helping familymember into bed, photo by byryo/Getty Images

    Commentary

    Recognizing Family Caregivers as Part of the Health Care Team

    Recent shifts in health care practices have left family caregivers increasingly responsible for medical tasks. Given family caregivers' central role in medical care, there are efforts underway to improve family caregiver integration into the health care team, but there are barriers to effective integration and engagement.

    Nov 18, 2019

  • Report

    Report

    Exploring the societal burden of multiple sclerosis: A study into the non-clinical impact of the disease, including changes with progression

    We looked at the non-clinical impacts of multiple sclerosis (MS) on the individual with MS, their carers and wider society, focusing on disease progression. We used a rapid evidence assessment and key informant interviews.

    Nov 18, 2019

  • Brochure

    Brochure

    Struggling with Dementia

    The costs of dementia -- economic and personal -- are staggering. A recent RAND analysis quantifies the scope of the problem in the United States and serves as a wake-up call to policymakers everywhere.

    Sep 9, 2019

  • Father and newborn baby, photo by ilkercelik/Getty Images

    Commentary

    Use It or Lose It—Why Taking Parental Leave Is So Important for Fathers

    The active involvement of both a mother and a father in the upbringing of a child has great social and psychological benefits. Yet, despite legal provisions allowing parents to take time off to look after children, such as parental leave, many men are still reluctant to take it.

    Mar 4, 2019

  • Father working at home with baby

    Commentary

    Work vs. Family: How Some Countries Lead the Way in Flexible Working

    Many families in the European Union struggle to balance their professional and domestic responsibilities. Harmony between work and home could be an important way to help children and adults and promote a more prosperous society at large. More action could be taken to support work-life balance for working parents.

    Jan 31, 2019

  • Multimedia

    The Vital Support of Post-9/11 Military Caregivers

    In this episode of Veterans in America, we talk about the military caregivers that inspired RAND's landmark study of America's "hidden heroes."

    Nov 12, 2018

  • A hospice nurse visiting an elderly patient

    News Release

    Growing Evidence Supports Best Practices in Palliative Care

    A rapidly aging U.S. population with complex care needs will likely accelerate emphasis on palliative care services. A review of palliative care research found substantial evidence to support clinical practice guidelines and was incorporated into the new edition of the guidelines.

    Oct 31, 2018

  • Multimedia

    Veterans in America Podcast

    Veterans in America is a special limited-series podcast that journeys into the lives of veterans and their loved ones, and shares insights from RAND research on how to improve their lives.

    Oct 29, 2018

  • Grandson who served in Iraq helps his grandfather, who served in WWII

    Testimony

    Supporting Military and Veteran Caregivers from All Eras

    Research suggests ways to improve federal programs that support military and veteran caregivers. Notably, programs should be tailored to the needs of different populations, such as pre-9/11 and post-9/11 caregivers.

    Feb 6, 2018

  • Journal Article

    Journal Article

    Changing Structures and Processes to Support Family Caregivers of Seriously Ill Patients

    Fundamental changes are needed in the way we identify, assess, and support family caregivers of seriously ill relatives.

    Dec 15, 2017

  • Journal Article

    Journal Article

    Impact of TBI on Caregivers of Veterans with TBI: Burden and Interventions

    Programs to support caregivers and families of veterans with traumatic brain injuries will benefit from further research on the specific economic and health needs of these caregivers.

    Dec 7, 2017

  • A woman hugging her soldier son or grandson

    Essay

    Military Caregivers Share the Costs of War

    Millions of veterans and service members receive care from family and friends who need support as well. Military caregivers sacrifice their time, their jobs, and even their health to provide a service worth billions of dollars to the United States. RAND research illuminates who they are, what they do, and what they need to succeed.

    Oct 30, 2017

  • Periodical

    Periodical

    RAND Review: November-December 2017

    This issue highlights recent RAND research on post-9/11 military caregivers; RAND-Lex, a computer program built at RAND that can analyze huge data sets of text; and the implications of climate change on Arctic cooperation.

    Oct 19, 2017

  • Multimedia

    Creating Better Support for Our Nation's Hidden Heroes

    An overview of the testimony presented by Terri Tanielian before the Senate Special Committee on Aging on June 14, 2017.

    Jun 14, 2017

  • Two people holding hands in a comforting manner

    Testimony

    Creating Better Support for Military and Veteran Caregivers

    Caregivers who provide unpaid, informal support to current and former U.S. service members are a key part of America's care for returning warriors. A new research blueprint could help improve support for these "hidden heroes."

    Jun 14, 2017