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     <title>RAND Research Topic: Caregivers</title>
     <link rel="self" href="https://www.rand.org/topics/caregivers.xml"/>
     <updated>2017-07-11T14:23:34Z</updated>
     <link rel="alternate" type="text/html" hreflang="en" href="https://www.rand.org/topics/caregivers.html" />
     <rights>Copyright (c) 2017, The RAND Corporation</rights>
     <author>
       <name>RAND Corporation</name>
     </author>
     <id>https://www.rand.org/topics/caregivers.html</id>
 
 <entry>
   <title type="html">Improving Dementia Long-Term Care</title>
   <author>
   	<name>Regina A. Shih; Thomas W. Concannon; Jodi Liu; Esther M. Friedman</name>
   	</author>  
   <id>https://www.rand.org/pubs/research_reports/RR597.html</id>
   <published>Jun 23, 2014</published>
   <updated>Jun 23, 2014</updated>
   <summary type="html">As baby boomers age, many will require long-term services and supports (LTSS) for dementia care. This blueprint outlines policy options and research directions to help decisionmakers improve the LTSS delivery system, workforce, and financing.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/research_reports/RR597.html" />
   
 </entry>
 
 <entry>
   <title type="html">Hidden Heroes</title>
   <author>
   	<name>Rajeev Ramchand; Terri Tanielian; Michael P. Fisher; Christine Anne Vaughan; Thomas E. Trail; Caroline Batka; Phoenix Voorhies; Michael Robbins; Eric Robinson; Madhumita Ghosh Dastidar</name>
   	</author>  
   <id>https://www.rand.org/pubs/research_reports/RR499.html</id>
   <published>Mar 31, 2014</published>
   <updated>Mar 31, 2014</updated>
   <summary type="html">This report summarizes a study designed to describe the magnitude of military caregiving in the United States today, as well as to identify gaps in the array of programs, policies, and initiatives designed to support military caregivers.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/research_reports/RR499.html" />
   
 </entry>
 
 <entry>
   <title type="html">Creating Better Support for Our Nation&apos;s Hidden Heroes</title>
   <author>
   	<name>RAND Corporation</name>
   	</author>  
   <id>https://www.rand.org/multimedia/video/2017/06/14/creating-better-support-for-our-nations-hidden-heroes.html</id>
   <published>Jun 14, 2017</published>
   <updated>Jun 14, 2017</updated>
   <summary type="html">An overview of the testimony presented by Terri Tanielian before the Senate Special Committee on Aging on June 14, 2017.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/multimedia/video/2017/06/14/creating-better-support-for-our-nations-hidden-heroes.html" />
   
 </entry>
 
 <entry>
   <title type="html">Creating Better Support for Military and Veteran Caregivers</title>
   <author>
   	<name>Terri Tanielian</name>
   	</author>  
   <id>https://www.rand.org/pubs/testimonies/CT478.html</id>
   <published>Jun 14, 2017</published>
   <updated>Jun 14, 2017</updated>
   <summary type="html">Caregivers who provide unpaid, informal support to current and former U.S. service members are a key part of America&apos;s care for returning warriors. A new research blueprint could help improve support for these &quot;hidden heroes.&quot;</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/testimonies/CT478.html" />
   
 </entry>
 
 <entry>
   <title type="html">Improving Support for America&apos;s Hidden Heroes</title>
   <author>
   	<name>Terri Tanielian; Kathryn E. Bouskill; Rajeev Ramchand; Esther M. Friedman; Thomas E. Trail; Angela Clague</name>
   	</author>  
   <id>https://www.rand.org/pubs/research_briefs/RB9950.html</id>
   <published>Jun 14, 2017</published>
   <updated>Jun 14, 2017</updated>
   <summary type="html">In this brief, RAND researchers document the construction and elements of a research blueprint to inform future efforts to improve support for military and veteran caregivers.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/research_briefs/RB9950.html" />
   
 </entry>
 
 <entry>
   <title type="html">Improving Support for Military and Veteran Caregivers: A Research Blueprint</title>
   <author>
   	<name>Terri Tanielian; Kathryn E. Bouskill; Rajeev Ramchand; Esther M. Friedman; Thomas E. Trail; Angela Clague</name>
   	</author>  
   <id>https://www.rand.org/pubs/research_reports/RR1873.html</id>
   <published>Jun 14, 2017</published>
   <updated>Jun 14, 2017</updated>
   <summary type="html">Millions of Americans provide informal care and support to current and former U.S. service members. A new research blueprint could help inform efforts to improve support for these &amp;ldquo;hidden heroes.&amp;rdquo;</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/research_reports/RR1873.html" />
   
 </entry>
 
 <entry>
   <title type="html">Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development</title>
   <author>
   	<name>Dmitry Khodyakov; Sean Grant; Ian D. Coulter; Arlene Fink</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP67170.html</id>
   <published>Jun 2, 2017</published>
   <updated>Jun 2, 2017</updated>
   <summary type="html">A new, online method to engage more patients and caregivers in developing clinical guidelines will be created and then tested, using Duchenne muscular dystrophy as an example.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP67170.html" />
   
 </entry>
 
 <entry>
   <title type="html">Development and Feasibility of a Structured Goals of Care Communication Guide</title>
   <author>
   	<name>David B. Bekelman; Sangeeta Ahluwalia; Anne Walling; Rebecca Sudore</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP67158.html</id>
   <published>May 30, 2017</published>
   <updated>May 30, 2017</updated>
   <summary type="html">Studies demonstrate the benefits of discussing goals of care and advance care planning, yet many patients with serious illness do not engage in such discussions with healthcare providers.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP67158.html" />
   
 </entry>
 
 <entry>
   <title type="html">Validation of New Quality Measures for Transitions Between Sites of Care</title>
   <author>
   	<name>Layla Parast; Q. Burkhart; Arti D. Desai; Tamara D. Simon; Carolyn Allshouse; Maria T Britto; JoAnna K. Leyenaar; Courtney A. Gidengil; Sara L Toomey; Marc N. Elliott; Eric C. Schneider; Rita Mangione-Smith</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP67160.html</id>
   <published>May 25, 2017</published>
   <updated>May 25, 2017</updated>
   <summary type="html">New quality measures may improve transition care for children after an emergency department or hospital visit.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP67160.html" />
   
 </entry>
 
 <entry>
   <title type="html">Treatment Motivation Among Caregivers and Adolescents with Substance Use Disorders</title>
   <author>
   	<name>Talea Cornelius; Valerie A. Earnshaw; David Menino; Laura M. Bogart; Sharon J. Levy</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP67087.html</id>
   <published>Apr 13, 2017</published>
   <updated>Apr 13, 2017</updated>
   <summary type="html">Treatment-seeking for substance use disorders among adolescents is more effective at promoting engagement with health care if the motivation comes from the adolescent him/herself rather than from a caregiver.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP67087.html" />
   
 </entry>
 
 <entry>
   <title type="html">Who Are the Men Caring for Maltreated Youth?</title>
   <author>
   	<name>Lynsay Ayer; Mahlet Atakilt Woldetsadik; Rosalie Malsberger; Lane F. Burgette; Patricia Kohl</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP66636.html</id>
   <published>Sep 21, 2016</published>
   <updated>Sep 21, 2016</updated>
   <summary type="html">Men who are the primary caregivers of youth in the child welfare system tend to be more similar than different from their female counterparts.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP66636.html" />
   
 </entry>
 
 <entry>
   <title type="html">Dementia Long-Term Care Policy Options for Family Caregivers and Medicare</title>
   <author>
   	<name>Regina A. Shih</name>
   	</author>  
   <id>https://www.rand.org/pubs/testimonies/CT457.html</id>
   <published>Jul 13, 2016</published>
   <updated>Jul 13, 2016</updated>
   <summary type="html">The total cost of caring for people in the United States with dementia in 2010 was estimated to be between $159 billion and $215 billion. As the nation&apos;s population ages, these costs will soar. Lawmakers could consider policy changes that support family caregivers and expand Medicaid eligibility.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/testimonies/CT457.html" />
   
 </entry>
 
 <entry>
   <title type="html">Professional Development for the Early Care and Education Workforce in Shelby County, Tennessee</title>
   <author>
   	<name>Jill Cannon; Anamarie Auger; Rebecca Diamond; Katherine L. Spurlock</name>
   	</author>  
   <id>https://www.rand.org/pubs/research_reports/RR1454.html</id>
   <published>Apr 13, 2016</published>
   <updated>Apr 13, 2016</updated>
   <summary type="html">This report examines how early care and education caregivers with licensed providers in Shelby County, Tennessee, gain through ongoing professional development the relevant knowledge for working with infants, toddlers, and preschool-age children.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/research_reports/RR1454.html" />
   
 </entry>
 
 <entry>
   <title type="html">Informal Caregiving for Dementia in the U.S.</title>
   <author>
   	<name>Esther M. Friedman; Regina A. Shih; Kenneth M Langa; Michael D. Hurd</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP50899.html</id>
   <published>Oct 20, 2015</published>
   <updated>Oct 20, 2015</updated>
   <summary type="html">Family members play a critical role in caring for older adults with and without dementia. In 2010, 5.5 million U.S. adults age 70 and older received informal care, including 3.6 million with cognitive impairment or dementia.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP50899.html" />
   
 </entry>
 
 <entry>
   <title type="html">Information Sharing Preferences of Older Patients and Their Families</title>
   <author>
   	<name>Bradley H. Crotty; Jan Walker; Meghan Dierks; Lewis Lipsitz; Jacqueline O&apos;Brien; Shira H. Fischer; Warner V. Slack; Charles Safran</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP51883.html</id>
   <published>Jul 13, 2015</published>
   <updated>Jul 13, 2015</updated>
   <summary type="html">Elderly patients often share control of their personal health information and decision making with family and friends when needed.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP51883.html" />
   
 </entry>
 
 <entry>
   <title type="html">Informal Carers&apos; Health-Related Quality of Life and Patient Experience in Primary Care</title>
   <author>
   	<name>Gwilym P. Thomas; Catherine L. Saunders; Martin Roland; Charlotte Paddison</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP50705.html</id>
   <published>May 18, 2015</published>
   <updated>May 18, 2015</updated>
   <summary type="html">We aim to describe the health-related quality of life of informal carers and their experiences of primary care.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP50705.html" />
   
 </entry>
 
 <entry>
   <title type="html">Dementia Care Management in an Underserved Community</title>
   <author>
   	<name>Joshua Chodosh; Benjamin Colaiaco; Karen Connor; Dennis W. Cope; Hangsheng Liu; David A. Ganz; Mark Jason Richman; Debra Cherry; Joseph Moshe Blank; Raquel del Carbone; Sheldon Mark Wolf; Barbara Vickrey</name>
   	</author>  
   <id>https://www.rand.org/pubs/external_publications/EP66254.html</id>
   <published>Feb 19, 2015</published>
   <updated>Feb 19, 2015</updated>
   <summary type="html">Compares the effectiveness and costs of telephone-only approach to in-person plus telephone for delivering an evidence-based, coordinated care management program for dementia.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/pubs/external_publications/EP66254.html" />
   
 </entry>
 
 <entry>
   <title type="html">China&apos;s Aging Population Poses Challenges, but Changes to Health and Migration Policies Can Help</title>
   <author>
   	<name>RAND Corporation</name>
   	</author>  
   <id>https://www.rand.org/news/press/2015/01/19.html</id>
   <published>Jan 19, 2015</published>
   <updated>Jan 19, 2015</updated>
   <summary type="html">While the rapid aging of China&apos;s population is thought to condemn the nation to a dismal future, past policies on education and new policies to improve health and foster internal migration could ease the challenges posed by an older citizenry.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/news/press/2015/01/19.html" />
   
 </entry>
 
 <entry>
   <title type="html">Getting to Know Military Caregivers and Their Needs</title>
   <author>
   	<name>RAND Corporation</name>
   	</author>  
   <id>https://www.rand.org/capabilities/solutions/getting-to-know-military-caregivers.html</id>
   <published>Jan 5, 2015</published>
   <updated>Jan 5, 2015</updated>
   <summary type="html">There are millions of military caregivers&amp;mdash;wives, husbands, siblings, parents, and friends&amp;mdash;caring for U.S. service members and veterans who are wounded, ill, or injured. These caregivers help their loved ones live better-quality lives, but their own needs may go unmet.</summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/capabilities/solutions/getting-to-know-military-caregivers.html" />
   
 </entry>
 
 <entry>
   <title type="html">Cost of Informal Caregiving for U.S. Elderly Is $522 Billion Annually</title>
   <author>
   	<name>RAND Corporation</name>
   	</author>  
   <id>https://www.rand.org/news/press/2014/10/27.html</id>
   <published>Oct 27, 2014</published>
   <updated>Oct 27, 2014</updated>
   <summary type="html">The price tag for informal caregiving of elderly people by friends and relatives in the U.S. comes to $522 billion a year. Replacing that care with unskilled paid care at minimum wage would cost $221 billion, while replacing it with skilled nursing care would cost $642 billion annually. </summary>
   <link rel="alternate" type="text/xhtml" hreflang="en" title="Read More" href="https://www.rand.org/news/press/2014/10/27.html" />
   
 </entry>
 
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