End of Life Care

Journal Article

Aug 14, 2024

Prognostication in Alzheimer's Disease and Related Dementias

Accurate 6-month prognostication can enhance access to hospice for people living with Alzheimer’s Disease or related dementias, including those who have a different primary diagnosis. Therefore, prognostication must be reconceptualized.

Journal Article

Jun 26, 2024

Racial Differences in Treatment Intensity at the End of Life Among Older Adults with Heart Failure: Evidence from the Health and Retirement Study

We compared treatment intensity between Black and White older adults with heart failure (HF) near the end of life, finding that Black HF patients were more likely to spend time on life support and die in a hospital than White HF patients.

Journal Article

Apr 25, 2024

Effects of a Web-Mail Mode on Response Rates and Responses to a Care Experience Survey: Results of a Randomized Experiment

Our study tested a sequential web-mail mode for administering a patient and family care experience survey in the hospice setting and examined its effects on response rates and reported perceptions of the quality of care.

Journal Article

Feb 12, 2024

Changes in Hospice Care Experiences During the COVID-19 Pandemic

We examine how the COVID-19 pandemic may have influenced the characteristics of patients receiving hospice care, the settings in which they received care, and their care experiences using national data from the CAHPS Hospice Survey.

Journal Article

Feb 5, 2024

Electronic Health Record (EHR)-based PROMIS Measures Among Neurology Clinic Decedents and Survivors: A Retrospective Cohort Analysis

Assessing symptom burden provides an opportunity to understand clinical decline,particularly as people approach the end of life. We sought to understand whether symptoms reported by patients can be used to assess decline in health.

Journal Article

Dec 4, 2023

Hospice Care Experiences Among Medicare Decedents With and Without COVID-19, 2020–2021

Care experiences declined in 2020-2021 by a small amount for hospice patients without COVID-19 and by a medium-to-large amount for patients with COVID-19. Differences in care experience between patients with and without COVID-19 narrowed over time.

Journal Article

Nov 17, 2023

Concurrent Hospice and Dialysis Care: Considerations for Implementation

We developed a conceptual model for concurrent hospice and dialysis care and a corresponding resource list.

Journal Article

Sep 5, 2023

"It Haunts Me": Impact of COVID-19 Deaths on Frontline Clinicians In Acute Care Settings — A Qualitative Study

This article examines clinicians’ experiences around end-of-life situations that arose during the provision of care to dying patients with COVID-19 in acute care settings and the impact of these experiences on the clinicians’ lives as health care professionals over time.

Journal Article

Aug 28, 2023

Relationship of POLST to Hospitalization and ICU Care Among Nursing Home Residents in California

This paper links Physician Orders for Life Sustaining Treatment (POLST) document status with actual intensity of care for nursing home residents in California.

Journal Article

Aug 16, 2023

Association of Hospice Profit Status With Family Caregivers' Reported Care Experiences

In this analysis of national CAHPS Hospice Survey data from 653,208 caregiver respondents, reflecting care received from 3107 hospices, family caregivers reported worse care experiences at for-profit hospices compared with not-for-profit hospices.

Journal Article

Jul 31, 2023

Evaluating the Pragmatic Characteristics of Advance Care Planning Outcome Measures in Dementia Clinical Trials: A Scoping Review

In this review of ACP RCTs enrolling PLWD or their care partners, we found that the majority of outcome measures were not highly pragmatic in nature and had high data capture burden, but over half were highly relevant to PLWD or their care partners.

Journal Article

Jun 21, 2023

Advance Care Planning Among Sexual Minority Men: Sociodemographic, Health Care, and Health Status Predictors

There is a dearth of contemporary information about advance care planning among sexual minority men, a population with disparities in health care and health status. We sought to address some of these gaps in a large, longitudinal cohort.

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End of Life Care

End of Life Care

Explore RAND’s Work on this Topic

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Prognostication in Alzheimer's Disease and Related Dementias

Racial Differences in Treatment Intensity at the End of Life Among Older Adults with Heart Failure: Evidence from the Health and Retirement Study

Effects of a Web-Mail Mode on Response Rates and Responses to a Care Experience Survey: Results of a Randomized Experiment

Changes in Hospice Care Experiences During the COVID-19 Pandemic

Electronic Health Record (EHR)-based PROMIS Measures Among Neurology Clinic Decedents and Survivors: A Retrospective Cohort Analysis

Hospice Care Experiences Among Medicare Decedents With and Without COVID-19, 2020–2021

Concurrent Hospice and Dialysis Care: Considerations for Implementation

"It Haunts Me": Impact of COVID-19 Deaths on Frontline Clinicians In Acute Care Settings — A Qualitative Study

Relationship of POLST to Hospitalization and ICU Care Among Nursing Home Residents in California

Association of Hospice Profit Status With Family Caregivers' Reported Care Experiences

Evaluating the Pragmatic Characteristics of Advance Care Planning Outcome Measures in Dementia Clinical Trials: A Scoping Review

Advance Care Planning Among Sexual Minority Men: Sociodemographic, Health Care, and Health Status Predictors

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