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Health Information Privacy

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Multimedia
Devices and Data: The Information We Share
RAND mathematician Mary Lee describes the wide variety of personal data collected by smart devices and applications, such as smartwatches, brain implants, and period trackers.
Feb 28, 2023
Commentary
Telemedicine Abortion? It's Not as Easy as It Sounds
The Supreme Court decision to overturn Roe v. Wade has providers and health advocates strategizing about how to provide more abortions where it is still legal. Expanding virtual medical visits is one popular idea. Policymakers and clinics could take steps to make telemedicine better understood, easier to use, and more equitable.
Aug 19, 2022

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Commentary
Digital Health Products Miss a Massive and Crucial Piece of a Person's Health
Our health is heavily influenced by our surroundings—including the health of the people around us. For digital health companies to credibly claim to improve people's health, their next step could be an increased willingness to look beyond an individualized notion of health and to work with public health agencies.
Dec 27, 2022
Blog
Dementia Rates, Deepfakes, Migrant Students: RAND Weekly Recap
This weekly recap focuses on the decline of dementia rates among Americans, the dangers of deepfakes, data privacy after the reversal of Roe v. Wade, and more.
Nov 18, 2022
Commentary
Privacy Rights Have Changed. Will Data Handling Follow?
Until privacy protection laws are cemented into place, consumer privacy won't be assured unless consumers can effectively take the steps they need to take to protect their data. Tech companies might view this as a burden, but there will likely be profits for those companies that instead see it as an opportunity.
Oct 24, 2022
Commentary
When IT Meets Medical Innovation: Regulatory and Policy Challenges for Software as a Medical Device
The demand for using software to improve health care, including software as a medical device (SaMD), is on the rise. Realizing the potential benefits of the growing demand for SaMD may require clearer and more-consistent regulation of patient safety and medical effectiveness.
Jun 10, 2022
Journal Article
Demonstrating Trustworthiness When Collecting and Sharing Genomic Data: Views Across 22 Countries
We examine how participants from 22 countries perceived the relative value of measures to demonstrate the trustworthiness of those using donated DNA and/or medical information.
Feb 10, 2022
Journal Article
Assessment of State and Federal Health Policies for Opioid Use Disorder Treatment During the COVID-19 Pandemic and Beyond
Researchers summarize the multitude of ways access to and utilization of treatment for individuals with OUD might have been expanded by state and federal policy during COVID-19 pandemic in 4 key areas: telehealth, privacy, licensing, and medication.
Nov 23, 2021
Journal Article
Transforming Public Health Data Systems: White Papers to Inform Commission
RWJF commissioned RAND to produce a series of white papers that describe the current landscape, emerging innovations, and opportunities for transforming and transitioning to a new public health data system.
Oct 20, 2021
Journal Article
The Value of Consent for Biobanking
Biobanks facilitate large-scale tests of hypotheses that may advance health, but whether biobanking participants adequately comprehend the potential uses of their data should concern researchers and the public.
Sep 21, 2021
Blog
Media Literacy, Internet of Bodies, Arctic Governance: RAND Weekly Recap
This weekly recap focuses on teaching media literacy in schools, a “connected future” via the Internet of Bodies, gaps in Arctic governance, and more.
Aug 6, 2021
Project
Internet of Bodies: Our Connected Future
Information designer Giorgia Lupi, RAND's inaugural artist-in-residence, produced a creative piece that explores questions about how the human body—and society on the whole—may be transformed through Internet of Bodies technology.
Jul 29, 2021
News Release
RAND Artist in Residence Giorgia Lupi Portrays Opportunities, Risks from 'Internet Of Bodies'
The latest visualization from the RAND Art + Data artist residency focuses on the Internet of Bodies. The artwork is inspired by RAND research and explores the benefits and risks of human body-centric and internet-connected technologies.
Jul 29, 2021
Blog
Prescription Drug Prices, Transgender Troops, Space Diplomacy: RAND Weekly Recap
This weekly recap focuses on America's high prescription drug prices, allowing transgender troops in the military, food insecurity in Black neighborhoods, and more.
Jan 29, 2021
Commentary
Now Could Be the Time to Form Policy for Emerging Brain- and Body-Enhancement Technologies
Policymakers might consider developing appropriate policy frameworks for emerging brain- and body-enhancement technologies to ensure that innovations harnessed for societal, economic, or military benefits do not create new vulnerabilities and that governments adequately defend and manage against potential attacks. The technology is quickly moving forward. Policy may need to play catch-up.
Jan 12, 2021
Essay
Are We Ready for the Internet of Bodies?
Any device can be hacked, including one inside the human body. We need to think through the privacy and security implications of devices that live with us. But we should also consider the life-changing, life-saving potential of technologies that know us inside and out.
Jan 8, 2021
Periodical
RAND Review: January-February 2021
The cover story on the ’Internet of Bodies’ highlights the perils of devices that track personal health data and provide medical treatment. Other columns explore vaccine hesitancy, the high price of insulin in the U.S., and social justice in America.
Jan 6, 2021
Report
United States–Japan Research Exchange on Artificial Intelligence: Proceedings from a Pair of Conferences on the Impact of Artificial Intelligence on Work, Health, and Data Privacy and on Disaster Prediction, Resilience, and Recovery
This report captures insights from two conferences that brought together U.S. and Japanese experts on work, health, and data security and on disaster response and disaster modeling to exchange views on artificial intelligence and machine learning.
Dec 7, 2020
Multimedia
What Is the Internet of Bodies?
RAND mathematician Mary Lee examines technologies that make up the Internet of Bodies (IoB); explores their benefits, risks, and ethical implications; surveys the regulatory landscape; and makes recommendations to balance IoB risks and rewards.
Oct 29, 2020
Report
The Internet of Bodies: Opportunities, Risks, and Governance
Within the broader Internet of Things (IoT) lies a subset of devices that monitor the human body and transmit the collected data. What are the benefits, security and privacy risks, and ethical implications of the growing Internet of Bodies (IoB)?
Oct 29, 2020

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RAND Topic:
Health Information Privacy

Topic Synonyms:
Health Information Security

Research conducted by

Researcher Spotlight

Shannon Walsh

Ph.D. Student, Pardee RAND Graduate School, and Assistant Policy Researcher, RAND

Shannon Walsh is a Ph.D. student in the Technology Applications and Implications stream at Pardee RAND Graduate School and an assistant policy researcher at RAND. Her research interests include health equity, biotechnology, emerging technology, and generative AI. She has an M.S. in digital…
M. Susan Ridgely

Adjunct Senior Health Policy Researcher

M. Susan Ridgely is an adjunct senior health policy researcher at the RAND Corporation and a Pardee RAND Graduate School affiliate faculty member. She has more than 30 years of experience in health services research and policy analysis.

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