Health Information Privacy

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  • Graphic depicting a man surrounded by potential Internet of Bodies health devices, graphic by Alyson Youngblood/RAND Corporation

    Article

    The Internet of Bodies Will Change Everything, for Better or Worse

    Oct 29, 2020

    The rise of devices that connect the human body to the web is accelerating rapidly. This Internet of Bodies could revolutionize health care and improve our quality of life. But without appropriate guardrails, it could also jeopardize our most intimate personal information and introduce several ethical concerns.

  • COVID-19 content displayed on a mobile phone, photo by da-kuk/Getty Images

    Research Brief

    COVID-19 Mobile Surveillance Tools Raise Privacy Concerns

    Jul 30, 2020

    Dozens of countries are using mobile phone tools and data sources for COVID-19 tracking. These tools are beneficial, but they also have the potential for harm. As public health agencies consider using mobile surveillance tools, they will need to address privacy concerns.

Explore Health Information Privacy

  • What is Contact Tracing?

    Multimedia

    What Is Contact Tracing?

    RAND's Ben Boudreaux describes how contact tracing can be used to track the spread of COVID-19 and explains the differences between manual and automated contact tracing.

    Jul 7, 2020

  • Blog

    What Happens When States Reopen, Truth Decay, Telemedicine: RAND Weekly Recap

    This weekly recap focuses on the health and economic consequences of states reopening, the dangers of 'Truth Decay' during the coronavirus crisis, helping refugees, and more.

    May 22, 2020

  • The Care19 mobile app, developed by the State of North Dakota to assist in contact tracing during the global outbreak of the COVID-19, April 24, 2020, photo by Paresh Dave/Reuters

    Commentary

    Should Communities Be Concerned About Digital Technologies to Fight COVID-19?

    Personal smart devices offer an unprecedented opportunity to identify, track, map, and communicate about COVID-19. But apps could pose privacy and security concerns.

    May 13, 2020

  • Report

    Report

    Exploring the use of Zcash cryptocurrency for illicit or criminal purposes

    To help inform public debate and decision making, RAND Europe explored the uses of cryptocurrencies for illicit or criminal purposes, focusing on the Zcash cryptocurrency, in a research project commissioned by the Electric Coin Company.

    May 6, 2020

  • usa, dog tag, memorial, veterans, day, tags, july 4th, american, wood, wooden, military, army, dog, flag, red, blue, tag, honor, states, patriotic, america, chain, background, veteran, freedom, patriot, holiday, courage, patriotism

    Report

    Cross-Agency Evaluation of DoD, VA, and HHS Mental Health Public Awareness Campaigns: Analysis of Campaign Scope, Content, and Reach

    This report evaluates efforts by four public awareness campaigns to overcome negative perceptions and promote awareness of mental health disorders and their treatment, with a focus on military and veteran populations.

    Jan 29, 2020

  • World War II veteran Manuel Diaz and Joint Region Marianas Command Master Chief Paul Kingsbury at a ceremony commemorating the 69th anniversary of the Battle of Midway

    Research Brief

    Evaluating Public Awareness Campaigns to Promote Military and Veteran Mental Health

    This brief describes the results of an interim evaluation that examined the scope, content, and dissemination of mental health public awareness campaigns. RAND researchers conducted a comprehensive evaluation of four such efforts.

    Jan 29, 2020

  • Research Brief

    Research Brief

    Make the Connection: Findings and Recommendations

    This brief is one in a series examining mental health public awareness campaigns' messages, consistency of messaging in their materials, and tools used to deliver content to audiences. This brief discusses materials from the Make the Connection.

    Jan 29, 2020

  • Research Brief

    Research Brief

    Real Warriors Campaign: Findings and Recommendations

    This brief is one in a series examining mental health public awareness campaigns' messages, consistency of messaging in their materials, and tools used to deliver content to audiences. This brief discusses materials from the Real Warrior Campaign.

    Jan 29, 2020

  • Research Brief

    Research Brief

    Recovery Month: Findings and Recommendations

    This brief is one in a series examining mental health public awareness campaigns' messages, consistency of messaging in their materials, and tools used to deliver content to audiences. This brief discusses materials from Recovery Month.

    Jan 29, 2020

  • National Veterans Awareness Ride members hold U.S. flags to show support during the National Vietnam War Veterans Day observance

    Research Brief

    Veterans Crisis Line: Findings and Recommendations

    This brief is one in a series examining mental health public awareness campaigns' messages, consistency of messaging in their materials, and tools used to deliver content to audiences. This brief discusses materials from the Veterans Crisis Line.

    Jan 29, 2020

  • Report

    Report

    Reuse of health data by the European pharmaceutical industry: Current practice and implications for the future

    Health data is re-used for a variety of reasons by pharmaceutical companies across the R&D pathway. RAND Europe suggests seven ways which might help create a sustainable ecosystem in which health data is reused effectively.

    Nov 12, 2019

  • Group of hands in a circle, each holding a puzzle piece, photo by Patcharin Saenlakon/Getty Images

    Tool

    Sharing and Integrating HIV Client Data Across Provider Organizations to Improve Service Coordination

    Recognizing the potential power of close collaboration, two federal programs that provide support to low-income people with HIV came together to determine how they could integrate data to improve outcomes for individuals with HIV who also experience housing instability. This toolkit, the result of that project, is an effort to demystify the data integration process and help others share data and coordinate services across providers.

    Nov 7, 2019

  • An illustration of a human's moral compass, image by Trifonov_Evgeniy/Getty Images

    Report

    Ethics in Scientific Research

    An analysis of how ethics are created, monitored, and enforced finds which ethical principles are common across scientific disciplines, how these ethics might vary geographically, and how emerging topics are shaping future ethics.

    Jun 5, 2019

  • Cyborg head using artificial intelligence to create digital interface 3D rendering, image by sdecoret/Adobe Stock

    Q&A

    The Promise and Perils of AI: Q&A with Douglas Yeung

    Douglas Yeung, a social psychologist at RAND, discusses how any technology reflects the values, norms, and biases of its creators. Bias in artificial intelligence could have unintended consequences. He also warns that cyber attackers could deliberately introduce bias into AI systems.

    Feb 27, 2019

  • Young Asian woman looking at an eye scanner image, photo by Photographer is my life/Getty Images

    Commentary

    Biology, in the Language of the People

    As technology and the ability to gather ever-growing amounts of data move further into the realms of biology and human performance, communication and transparency become increasingly important. Experts should consider whether they are using the words, examples, and models that connect with a broad audience most effectively.

    Feb 21, 2019

  • A robot's hand selecting a candidate photograph

    Commentary

    Intentional Bias Is Another Way Artificial Intelligence Could Hurt Us

    Conversations about unconscious bias in artificial intelligence often focus on algorithms unintentionally causing disproportionate harm to entire swaths of society. But the problem could run much deeper. Society should be on guard for the possibility that nefarious actors could deliberately introduce bias into AI systems.

    Oct 22, 2018

  • Woman's eye with technology of security concept

    Commentary

    The Perils of Connecting Our Bodies to the Internet

    High-tech health care solutions are part of an emerging sector of medical technologies that monitor personal health data by essentially connecting your body to the Internet. As smart devices in health care evolve, the line between human and machine is blurring, and creating new concerns about consumer safety and privacy rights.

    Oct 15, 2018

  • Doctors using a tablet and a desktop computer to view a patient's medical records

    Commentary

    How Smartphone Apps Could Help Keep Health Records Accurate

    Electronic health records have helped streamline record keeping but providers aren't always able to reliably pull together records for the same patient from different hospitals, clinics, and doctor's offices. The growing use of smartphones offers a promising opportunity to improve record matching.

    Oct 4, 2018

  • News Release

    News Release

    Mobile Phones and Smartphone Apps Hold Promise for Allowing Patient Participation in Improving Medical Record Matching

    Mobile phones and smartphone apps offer a promising approach to ensure that an individual's medical records when shared between different health care providers are matched correctly.

    Aug 22, 2018

  • A medical record app displaying on a smartphone

    Report

    Patients Could Help Improve Record Matching

    When health providers exchange medical records, the success rate can be as low as 50 percent. The ubiquity of mobile phones offers a promising opportunity to create a patient-empowered system to confirm identities that would allow hospitals and other providers to match records more accurately.

    Aug 22, 2018