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Hospice Care

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End of Life Care
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Journal Article

Sep 19, 2024

Association Between Physician Age and Patterns of End-of-Life Care Among Older Americans

Using a nationally representative sample of Medicare beneficiaries, we examined the association between physician age and patterns of end of life (EOL) care with a broad range of EOL care measures.
Journal Article

Aug 14, 2024

Prognostication in Alzheimer's Disease and Related Dementias

Accurate 6-month prognostication can enhance access to hospice for people living with Alzheimer’s Disease or related dementias, including those who have a different primary diagnosis. Therefore, prognostication must be reconceptualized.
Journal Article

Apr 25, 2024

Effects of a Web-Mail Mode on Response Rates and Responses to a Care Experience Survey: Results of a Randomized Experiment

Our study tested a sequential web-mail mode for administering a patient and family care experience survey in the hospice setting and examined its effects on response rates and reported perceptions of the quality of care.
Journal Article

Feb 12, 2024

Changes in Hospice Care Experiences During the COVID-19 Pandemic

We examine how the COVID-19 pandemic may have influenced the characteristics of patients receiving hospice care, the settings in which they received care, and their care experiences using national data from the CAHPS Hospice Survey.
Journal Article

Dec 4, 2023

Hospice Care Experiences Among Medicare Decedents With and Without COVID-19, 2020–2021

Care experiences declined in 2020-2021 by a small amount for hospice patients without COVID-19 and by a medium-to-large amount for patients with COVID-19. Differences in care experience between patients with and without COVID-19 narrowed over time.
Journal Article

Nov 17, 2023

Concurrent Hospice and Dialysis Care: Considerations for Implementation

We developed a conceptual model for concurrent hospice and dialysis care and a corresponding resource list.
Journal Article

Aug 16, 2023

Association of Hospice Profit Status With Family Caregivers' Reported Care Experiences

In this analysis of national CAHPS Hospice Survey data from 653,208 caregiver respondents, reflecting care received from 3107 hospices, family caregivers reported worse care experiences at for-profit hospices compared with not-for-profit hospices.
Journal Article

May 4, 2023

Patient-Reported Quality Measures for Palliative Care: The Time Is Now

A recent CMS analysis revealed a lack of patient-reported measures in palliative care, particularly in symptom management and communication. We used a patient-centered approach to develop and test two measures for patients receiving palliative care.
News Release

Feb 27, 2023

Care Experiences Are Worse in For-Profit Hospices Than in Not-for-Profit Hospices

Family caregivers of patients treated by more than 3,100 U.S. hospices reported worse care experiences on average from for-profit hospices across all of the domains assessed, including help for pain and getting timely care.
Journal Article

Jun 1, 2022

Evaluation of a Home-Based, Nurse Practitioner–led Advanced Illness Care Program

Evaluation of a nurse-led, home-based serious illness care program (Advanced Illness Care) at UPMC, a health system in Pittsburgh, PA.
Tool

Nov 2, 2021

RAND Serious Illness Survey

The RAND Serious Illness Survey assesses the care experiences of individuals who receive care from programs that provide serious illness care to patients in their homes.
Journal Article

Apr 21, 2021

Association Between Receipt of Emotional Support and Caregivers' Overall Hospice Rating

"Too much emotional support" is not always viewed negatively in consumer ratings of hospice care.

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