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Palliative Care

Report
MACRA Palliative Care Quality Measure Development—Testing Summary Report: Measure Name: Receiving Desired Help for Pain
The authors describe the results of their national beta field test for a performance measure designed to assess the extent to which patients who used ambulatory palliative care received the help they wanted for their pain.
Sep 3, 2021
Report
MACRA Palliative Care Quality Measure Development—Testing Summary Report: Measure Name: Feeling Heard and Understood
The authors describe the results of their national beta field test for a performance measure designed to assess the extent to which patients who used ambulatory palliative care felt heard and understood by their palliative care provider and team.
Sep 3, 2021
Journal Article
Association Between Receipt of Emotional Support and Caregivers' Overall Hospice Rating
"Too much emotional support" is not always viewed negatively in consumer ratings of hospice care.
Apr 21, 2021
Journal Article
Improving Care Experiences for Patients and Caregivers at End of Life: A Systematic Review
Previous reviews examined palliative care improvements or available measures but none explicitly on improving care experiences. We reviewed literature on improving patient and/or caregiver end-of-life care experiences.
Apr 7, 2021
Journal Article
Bereaved Family More Likely to Report "Too Little" Care Than "Too Much" Care at the End of Life
Interviews with family members about their loved one's end-of-life care found that a majority thought he or she received the right amount of care. One in six said their family member received too little care.
Mar 31, 2021
Journal Article
Racial Differences in End-of-Life Care Quality Between Asian Americans and Non-Hispanic Whites in San Francisco Bay Area
Compared with caregivers of non-Hispanic whites, caregivers of Asian decedents reported unmet needs for caregiver support and lack of respect for cultural traditions and religious/spiritual beliefs.
Mar 2, 2021
Journal Article
Hospice Care Experiences Among Cancer Patients and Their Caregivers
Opportunities exist to improve hospice care for symptom palliation and training for caregivers when their family members are at home or in an ALF setting. Efforts to improve care for cancer patients in the NH and ALF setting are especially needed.
Feb 26, 2021
Journal Article
Negotiating the 'Buffet' of Choice: Advances in Technology and End-of-Life Decision-Making in the Intensive Care Unit Setting
This article explores medical decision-making in the setting of the intensive care unit (ICU) drawing on ethnographic data of ICUs as well as interviews with family members of critically ill patients as and clinicians.
Sep 3, 2020
Journal Article
Dyadic Model of Adaptation to Life-Limiting Illness
This review of the scholarly and empirical literature as well as a growing body of research examining adjustment to the prospect of the end of life support the concept of dyads, where one member of a mutual partnership is experiencing losses in the context of life-threatening illness while the other member goes through adjustments.
Jun 26, 2020
Journal Article
Characteristics of Hospices Providing High-Quality Care
Hospice characteristics associated with strong performance on Hospice Item Set measures differ from those associated with strong performance on CAHPS measures. Providing professional staff visits in the last two days of life is associated with high performance in both quality domains.
Jun 25, 2020
Journal Article
Differences in Caregiver Reports of the Quality of Hospice Care Across Settings
Important opportunities exist to improve quality of hospice care in nursing homes and assisted-living facilities. Quality improvement and regulatory interventions targeting these settings are needed to ensure that all hospice decedents and their family receive high-quality, patient- and family-centered hospice care.
Jun 25, 2020
Journal Article
Palliative Care and Infection Management at End of Life in Nursing Homes: A Descriptive Survey
The aim of this study was to describe the current status of how nursing homes integrates palliative care and infection management at end of life across the nation.
Mar 19, 2020
Journal Article
Health System and Beneficiary Costs Associated With Intensive End-of-Life Medical Services
The objective of this paper is to quantify expected beneficiary and health system costs incurred in association with receipt of intensive medical services in the last month of life.
Mar 11, 2020
Report
Development of Palliative Care Quality Measures for Outpatients in a Clinic-Based Setting: A Report on Information Gathering Activities
This report summarizes information gathering activities completed as of September 2019. It provides background information on the importance of and need for development of quality measures for palliative care based on patient-reported experience.
Feb 25, 2020
Brochure
Effecting Change, Improving Health
The RAND Corporation is dedicated to transforming the wellbeing of all people by improving health care systems in the United States and abroad.
Feb 7, 2020
Journal Article
A Systematic Review in Support of the National Consensus Project Clinical Practice Guidelines for Quality Palliative Care, Fourth Edition
A substantial body of evidence exists to support clinical practice guidelines for quality palliative care but the quality of evidence is limited.
Mar 26, 2019
News Release
Growing Evidence Supports Best Practices in Palliative Care
A rapidly aging U.S. population with complex care needs will likely accelerate emphasis on palliative care services. A review of palliative care research found substantial evidence to support clinical practice guidelines and was incorporated into the new edition of the guidelines.
Oct 31, 2018
Periodical
RAND Review: March-April 2018
This issue features a Q&A with Michael Rich, Soledad O'Brien, and Francis Fukuyama on the perils of truth decay, and a story on the trend toward unretirement among U.S. workers. The Voices column features Gulrez Shah Azhar on environmental refugees.
Mar 5, 2018
Journal Article
Changing Structures and Processes to Support Family Caregivers of Seriously Ill Patients
Fundamental changes are needed in the way we identify, assess, and support family caregivers of seriously ill relatives.
Dec 15, 2017
Journal Article
Black and Hispanic Patients Receive Hospice Care Similar to That of White Patients When in the Same Hospices
Black and Hispanic patients received care from poorer quality hospices than white patients.
Aug 1, 2017

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Researcher Spotlight

Debra Saliba

Physician Policy Researcher

Debra Saliba (she/her) is a physician policy researcher at the RAND Corporation, and a professor of medicine and the Anna & Harry Borun Endowed Chair in Geriatrics at UCLA. At the Los Angeles VA she is associate director for education in the HSR&D Center of Innovation. As a practicing…
Sangeeta C. Ahluwalia

Associate Research Department Director, Behavioral and Policy Sciences Department

Sangeeta Ahluwalia (she/her/hers) is associate research department director for the Behavioral and Policy Sciences Department and a senior policy researcher at the RAND Corporation. She is also an adjunct associate professor of health policy at the UCLA Fielding School of Public Health.…

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