Kidney Disease Quality of Life Instrument (KDQOL)

Instruments and Scoring Programs Downloads

All of the surveys and tools are public documents, available without charge (for non-commercial purposes). Please see our FAQ page for more information.

The KDQOL-SF™ v1.3 Survey

• Instrument only (does not include optional demographic items - see scoring manual below for these).

• Scoring manual or .zip version (version 1.3; includes an optional set of suggested demographic items):
  Hays, R.D., et. al. (1997). Kidney Disease Quality of Life Short Form (KDQOL-SF™), Version 1.3: A Manual for Use and Scoring. Santa Monica, CA: RAND, P-7994.

The KDQOL-36™ Survey

The KDQOL-36™ is a short form that includes the SF-12 as generic core plus the burden of kidney disease, symptoms/problems of kidney disease, and effects of kidney disease scales from the KDQOL-SF™v1.3. A crosswalk between the two instruments can be found on our FAQ page.

Items 1-12: SF-12
Items 13-16: Burden of kidney disease (k=4)
Items 17-28: Symptoms/problems (k=12)
Items 29-36: Effects of kidney disease (k=8)

• Instrument only
  (see the KDQOL-SF™v1.3 scoring manual for optional demographic items and the description of scoring for portions of the KDQOL-SF™v1.3 that are relevant to the KDQOL-36™)

Translated documents (non-U.S. English)

Please note: the following translations have been created wholly by the listed contributors, and have not been evaluated or reviewed by RAND. RAND is providing the translations as a courtesy, and is not responsible for any inaccuracies or errors in the documents below.

Language and country	PDF/DOC Download	With thanks to contributors:
Arabic	KDQOL-SF 1.3 (.pdf)	Dr. Samar Abd ElHafeez
Bengali (Bangladesh)	KDQOL-36 (.doc) KDQOL-36 (.pdf)	Amgen, Inc. and MAPI Institute
Cantonese Chinese (Hong Kong)	KDQOL-36 (.doc) KDQOL-36 (.pdf)	Amgen, Inc. and MAPI Institute
Cantonese Chinese (Hong Kong)	KDQOL-24	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Chinese (Hong Kong)	KDQOL 1.3	Dr. Angela Wang
Czech	KDQOL 1.2	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Danish	KDQOL 1.3 (incl demographic items)	Stig Molsted, PT Inge Eidemak, MD, PhD.
Danish	KDQOL 1.2	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Dutch	KDQOL 1.2	Marie-Pierre Emery, M.Sc., Director MAPI Institute
English (U.K.)	KDQOL 1.2	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Filipino (Philippines)	KDQOL 1.3	Dr. Rommel P. Bataclan VRP Medical Center, Philippines
French (France)	KDQOL 1.2	Marie-Pierre Emery, M.Sc., Director MAPI Institute
French (France)	KDQOL 1.2	Alain LePlege
French Creole (Haiti)	KDQOL-36	Amgen, Inc., MAPI Institute and MEI contact person: Dori Schatell, MS
German (Germany)	KDQOL 1.2	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Greek (Greece)	KDQOL	Brian Bresnahan, and Sonya Eremenco, M.A.
Hebrew	KDQOL-24	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Hungarian (Hungary)	KDQOL	Brian Bresnahan, and Sonya Eremenco, M.A.
Italian (Italy)	KDQOL 1.3	Dr. Catherine Klersy www.sanmatteo.org
Iranian (Iran)	KDQOL 1.3 Related publication	Amir H. Pakpur, PhD Department of Public Health Qazvin University of Medical Sciences Qazvin, Iran
Korean (Korea)	KDQOL 1.3	Sehyun Kim, PhD, Kyung Hee University
Korean (Korea)	KDQOL-36 (.doc) KDQOL-36 (.pdf)	Amgen, Inc. and MAPI Institute
Malay (Singapore)	KDQOL-24	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Mandarin Chinese	KDQOL-24	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Mandarin Chinese (China)	KDQOL-36 (.doc) KDQOL-36 (.pdf)	Amgen, Inc. and MAPI Institute
Polish (Poland)	KDQOL 1.2	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Polish (Poland)	KDQOL-SF	Brian Bresnahan Sonya Eremenco, M.A.
Portuguese (Brazil)	KDQOL 1.3 (.pdf) KDQOL 1.3 (.doc)	Dr. Priscila Duarte
Portuguese (Brazil)	KDQOL 1.3 (que esta na test)	Dr. Priscila Duarte
Portuguese (Portugal)	KDQOL 1.3	Dr. Pedro Lopes Ferreira
Russian (Russia)	KDQOL 1.3	Dr. Irina Vassilieva
Spanish (Puerto Rico)	KDQOL-36	Consortium of Dialysis Patients and Social Workers in Puerto Rico
Spanish (Spain)	Provided as is without supporting documentation. KDQOL-SF	Jordi Alonso, MD, PhD
Spanish (U.S.)	KDQOL 1.3	Benjamin Arnold, M.A.
Spanish (U.S.)	KDQOL-36	MEI adaptation of ENH's Spanish KDQOL 1.3 version (Benjamin Arnold)
Swedish	KDQOL 1.2	Marie-Pierre Emery, M.Sc., Director MAPI Institute
Turkish (Turkey)	KDQOL-36	Prof. Dr. Aysegul Yildirim Dr. Betul Ogutmen Marmara University

KDQOL-35 symptom list translations

Provided courtesy of Cèline Perriolat and MAPI Institute

Country/Language	File name & type	Operating System/Software
U.S. English (original)	KDQOL-35-Symptom List_TS1.0_eng-USori.doc	WIN XP/Word 2003
Dutch (Belgium)	KDQOL-35-Symptom List_TS1.0_dut-BE.doc KDQOL-35-Symptom List_TS1.0_dut-BE.pdf	WIN XP/Word 2003 Adobe Acrobat 7.0
French (Belgium)	KDQOL-35-Symptom List_TS1.0_fre-BE.doc KDQOL-35-Symptom List_TS1.0_fre-BE.pdf	WIN XP/Word 2003 Adobe Acrobat 7.0
French (France)	KDQOL-35-Symptom List_TS1.0_fre-FR.doc KDQOL-35-Symptom List_TS1.0_fre-FR.pdf	WIN XP/Word 2003 Adobe Acrobat 7.0
French (Switzerland)	KDQOL-35-Symptom List_TS1.0_fre-CH.doc KDQOL-35-Symptom List_TS1.0_fre-CH.pdf	WIN XP/Word 2003 Adobe Acrobat 7.0
German (Switzerland)	KDQOL-35-Symptom List_TS1.0_ger-CH.doc KDQOL-35-Symptom List_TS1.0_ger-CH.pdf	WIN XP/Word 2003 Adobe Acrobat 7.0
Italian (Italy)	KDQOL-35-Symptom List_TS1.0_ita-IT.doc KDQOL-35-Symptom List_TS1.0_ita-IT.pdf	WIN XP/Word 2003 Adobe Acrobat 7.0
Spanish (Spain)	KDQOL-35-Symptom List_TS1.0_spa-ES.doc KDQOL-35-Symptom List_TS1.0_spa-ES.pdf	WIN XP/Word 2003 Adobe Acrobat 7.0
Spanish (U.S.)	KDQOL-35-Symptom List_TS1.0_spa-US.doc KDQOL-35-Symptom List_TS1.0_spa-US.pdf	WIN XP/Word 2003 Adobe Acrobat 7.0