Symposium Agenda

Symposium Videos

Videos are available via YouTube of each part of the symposium. To view one or all of the videos, please click the links below:

Additional Symposium Files

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Time Agenda Item Presenter
8:00am - 8:45am Registration and Informal Networking
8:45am - 9:15am Opening Session Scott Smith, ASPE
Kerry Reynolds, RAND
Justin Timbie, RAND
9:15am - 10:30am Session 1: Data Capture Watch the Video (YouTube)
Cancer-related financial hardship screening as part of practice transformation

Caring for Individuals with Intellectual and/or Developmental Disabilities – Determining Outcomes that Matter

Enhancing Cancer Economic Data Resources: The Interagency Consortium to Promote Health Economics Research on Cancer (HEROiC)

Reactor Panel 1 and Q&A

Courtney Williams, University of Alabama at Birmingham
John Palatucci, Rutgers School of Public Health

Michael T. Halpern, National Cancer Institute (NCI)

Joel Cohen, AHRQ
Gwen Darlen, National Patient Advocate Foundation
Erin Holve, PCORI
10:30am - 10:45am BREAK
10:45am - 12:25pm Session 2: Data Linkages Watch the Video (YouTube)
Medicare Data Linkages for Conducting Patient-Centered Outcomes Research on Economic Outcomes

Linking Medicare-Medicaid Claims for Patient Centered Outcomes Research Among Dual-Eligible Beneficiaries

Building Data Infrastructure for Disease-Focused Health Economics Research

Avenues for Strengthening PCORnet’s Capacity to Advance Patient-Centered Economic Outcomes in Patient-Centered Outcomes Research

Reactor Panel 2 and Q&A

Derek Brown, Washington University in St. Louis

Kelley Jones, Duke University

Cathy Bradley, University of Colorado
Elizabeth Nauman, Louisiana Public Health Institute

Robin Yabroff, American Cancer Society
Greg Merritt, Patient is Partner, LLC
Sharon Arnold, ASPE
12:25pm - 1:30pm Lunch and Paper Feedback
1:30pm - 1:45pm Afternoon Session Opening Ben Sommers, ASPE Senior Official
1:45pm - 3:00pm Session 3: Measurement Watch the Video (YouTube)
Much Work to Do about Measuring Work

Using Address Data to Track Household Financial Burden of Disease

Estimating Beneficiary Out-of-Pocket Costs in Medicare Advantage

Reactor Panel 3 and Q&A

Cathy Bradley, University of Colorado
Lauren Hersh Nicholas, University of Colorado
Erin Taylor, RAND

David Meltzer, University of Chicago
Seth Morgan, Neurologist
Andre Chappel, ASPE
3:00pm - 3:15pm BREAK
3:15pm - 4:30pm Session 4: Empirical Studies Watch the Video (YouTube)
Perceived Discrimination and Cost-related non-Utilization of Healthcare Services: A Systematic Examination of Explanatory Factors

“You Have to Rob Peter to Pay Paul so Your Kid can Breathe”: Using Qualitative Methods to Characterize Trade-offs and Economic Impact of Asthma Care Costs

Developing an integrated longitudinal dataset to study patient-centered outcome measures in cost-related medication non-adherence and transitioning from traditional Medicare to Medicare Advantage

Reactor Panel 4 and Q&A

Eberechukwu Onukwugha, University of Maryland School of Pharmacy
Alison Galbraith, Harvard Medical School

James X. Zhang, University of Chicago

Jennifer DeVoe, Oregon Health & Science University
David Kelley, Pennsylvania Department of Human Services
Scott Grosse, CDC
4:30pm - 5:15pm Closing Session: Next Steps for Advancing Data Capacity to Study Economic Outcomes in PCOR Emily Evans, ASPE
Kerry Reynolds, RAND
Scott Smith, ASPE
Nancy DeLew, ASPE
Justin Timbie, RAND