Rebecca Anhang Price

Debunking Myths About Patient Experience Surveys

Patient experience surveys give patients a voice. They can provide fair and relevant indicators that complement other metrics of health care quality to monitor and improve care.

The Great Patient Experience Survey Myth

Patient experience with care is an essential element in any assessment of health care quality. Surveys give patients a voice and provide fair and relevant indicators that complement other metrics of health care quality to inform patients' choices and providers' decisions about how to improve care.

Putting Patients First Can Result in Better Care Overall

Better patient care experiences are associated with higher levels of adherence to recommended prevention and treatment processes, better clinical outcomes, better patient safety within hospitals, and less health care utilization.

Understanding the Roots of Dramatic Black-White Cancer Disparities in the Nation's Capital

The burden of cancer is not experienced equally across the population: Nationwide, black Americans have higher rates of death from cancer than white Americans, and nowhere has this disparity been more apparent than in the nation's capital, writes Rebecca Anhang Price.

Journal Article

Evaluation of Phase II of the Medicare Advantage Value-Based Insurance Design Model Test: First Three Years of Implementation (2020–2022)

RAND researchers are conducting a multiyear evaluation of the VBID Model test using a mixed-methods approach that involves surveys, interviews, and quantitative analyses of the relationship between VBID implementation and a variety of outcomes.

Journal Article

Association of Hospice Profit Status With Family Caregivers' Reported Care Experiences

In this analysis of national CAHPS Hospice Survey data from 653,208 caregiver respondents, reflecting care received from 3107 hospices, family caregivers reported worse care experiences at for-profit hospices compared with not-for-profit hospices.

Journal Article

A Systematic Review of Strategies to Enhance Response Rates and Representativeness of Patient Experience Surveys

The objective of this paper is to review evidence on survey administration strategies to improve response rates and representativeness of patient surveys.

Journal Article

Evaluation of Phase II of the Medicare Advantage Value-Based Insurance Design Model Test: First Two Years of Implementation (2020–2021), and Appendixes

This report presents the RAND Corporation team's findings from its evaluation of Phase II of the Medicare Advantage Value-Based Insurance Design model test, for the years 2020 and 2021.

Journal Article

Adjusting for Patient Characteristics to Compare Quality of Care Provided by Serious Illness Programs

To ensure fair comparison of serious illness programs, quality measure scores should be case-mix adjusted for variables that influence patients' reports about care quality, but are not under the control of the program administering care.

Tool

Serious Illness Survey for Home-Based Programs

RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes.

Tool

Serious Illness Survey for Home-Based Programs: Spanish-Language Version

RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes. This is the Spanish version of the survey tool.

Journal Article

Examining the Business Case for Patient Experience: A Systematic Review

This article reviews the literature on associations between patient experience and business outcomes, including patient allegiance and retention, complaints, lawsuits, provider job satisfaction, and profitability.

Journal Article

Hospice Care Experiences Among Cancer Patients and Their Caregivers

Opportunities exist to improve hospice care for symptom palliation and training for caregivers when their family members are at home or in an ALF setting. Efforts to improve care for cancer patients in the NH and ALF setting are especially needed.

Journal Article

"If We Turned Our Backs, They Would Ignore Our Wishes": Bereaved Family Perceptions of Concordance of Care at the End of Life

The purpose of this study was to characterize decedent wishes for care at the end of life and to examine next of kin narratives of their loved ones' perceptions of whether wishes were honored.

Journal Article

Reliable and Valid Survey-Based Measures to Assess Quality of Care in Home-Based Serious Illness Programs

Our analyses provide evidence of the feasibility, reliability, and validity of proposed survey-based measures to assess the quality of home-based serious illness care from the perspective of patients and their families.

Journal Article

Differences in Caregiver Reports of the Quality of Hospice Care Across Settings

Important opportunities exist to improve quality of hospice care in nursing homes and assisted-living facilities. Quality improvement and regulatory interventions targeting these settings are needed to ensure that all hospice decedents and their family receive high-quality, patient- and family-centered hospice care.

Journal Article

Characteristics of Hospices Providing High-Quality Care

Hospice characteristics associated with strong performance on Hospice Item Set measures differ from those associated with strong performance on CAHPS measures. Providing professional staff visits in the last two days of life is associated with high performance in both quality domains.

Journal Article

Association Between Receipt of Emotional Support and Caregivers' Overall Hospice Rating

"Too much emotional support" is not always viewed negatively in consumer ratings of hospice care.

Journal Article

Bereaved Family More Likely to Report "Too Little" Care Than "Too Much" Care at the End of Life

Interviews with family members about their loved one's end-of-life care found that a majority thought he or she received the right amount of care. One in six said their family member received too little care.

Journal Article

Quality Measurement of Serious Illness Communication: Recommendations for Health Systems Based on Findings from a Symposium of National Experts

Patients, clinicians, and health systems increasingly align around the importance of high-quality communication in serious illness. We offer recommendations to advance serious illness communication quality measurement.

Journal Article

Racial Differences in End-of-Life Care Quality Between Asian Americans and Non-Hispanic Whites in San Francisco Bay Area

Compared with caregivers of non-Hispanic whites, caregivers of Asian decedents reported unmet needs for caregiver support and lack of respect for cultural traditions and religious/spiritual beliefs.

Journal Article

Comparing Quality of Care in Veterans Affairs and Non-Veterans Affairs Settings

The VA  health system performed as well or better than the non-VA system on most of inpatient and outpatient care quality, but there was high variation in quality across VA facilities. 

Journal Article

Measuring Patient-Centeredness of Care for Seriously Ill Individuals: Challenges and Opportunities for Accountability Initiatives

High quality care for seriously ill patients could be promoted by developing a nationally endorsed survey instrument that assesses patient and family experiences of serious illness care, an administrative data structure to identify the most knowledgeable respondents for the survey, and a tool kit of quality improvement approaches.

Journal Article

Black and Hispanic Patients Receive Hospice Care Similar to That of White Patients When in the Same Hospices

Black and Hispanic patients received care from poorer quality hospices than white patients.

Journal Article

Challenges Of Measuring Quality Of Community-Based Programs For Seriously Ill Individuals And Their Families

Quality measures and payment approaches for community-based programs serving seriously ill patients should incorporate core components such as communication, shared decision making, and advance care planning.

Journal Article

Comparing VA and Non-Va Quality of Care: A Systematic Review

The VA often performs better than or similarly to other systems of care with regard to the safety and effectiveness of care.

Research Brief

Minding the Gaps: Measuring Quality Based on Episodes of Care

An episode-based framework of health care quality measurement could provide a more complete picture of care than current methods. Existing quality measures could be used, but new ones would need to be developed to fill gaps in the framework.

Journal Article

Episode-based Approaches to Measuring Health Care Quality

Developing an episode-based framework of health care quality measurement would allow for more comprehensive assessments of care quality than currently available methods.

Report

Resources and Capabilities of the Department of Veterans Affairs to Provide Timely and Accessible Care to Veterans

The Department of Veterans Affairs health care system, with broad resources and capabilities, provides timely and high-quality care to most, but not all, patients. Meeting veterans' needs over the next five years will require additional capacity.

Journal Article

Do Experiences with Medicare Managed Care Vary According to the Proportion of Same-Race/Ethnicity/language Individuals Enrolled in One's Contract?

The authors examine whether care experiences and immunization for racial/ethnic/language minority Medicare beneficiaries vary with the proportion of same-group beneficiaries in Medicare Advantage (MA) contracts.

Journal Article

Measuring Experience with End-of-Life Care: A Systematic Literature Review

We conducted a systematic review of PubMed, PsycINFO, and PsycTESTS for all English-language articles published after 1990 using instruments to measure adult patient, family, or informal caregiver experiences with end-of-life care.

Journal Article

Methodological Considerations When Studying the Association Between Patient-Reported Care Experiences and Mortality

The authors illustrate methodological considerations when assessing the relationship between patient care experiences and mortality.

Journal Article

Should Health Care Providers Be Accountable for Patients' Care Experiences?

Patient experience measures based on rigorously developed and implemented patient surveys can and do overcome concerns regarding the relevance, fairness and unintended consequences of these surveys.

Report

Hospice Experience of Care Survey: Development and Field Test

This report describes development of the Hospice Experience of Care Survey, field test design, procedures, analytic methods and findings, and the final survey for national implementation by the Centers for Medicare & Medicaid Services.

Journal Article

Examining the Role of Patient Experience Surveys in Measuring Health Care Quality

There is no inherent trade-off between strong performance on patient experience indicators and performance on clinical quality measures.

Journal Article

Feasibility of Web-Based Self-Triage by Parents of Children with Influenza-Like Illness: A Cautionary Tale

Self-triage using web-based decision support could be a useful way to encourage appropriate care-seeking behavior and reduce health system surge in epidemics.

Report

Monitoring Cancer Outcomes Across the Continuum: Data Synthesis and Analysis for the District of Columbia

This report synthesizes and analyzes available data regarding cancer-related outcomes among District of Columbia residents, highlighting key findings and data gaps across the continuum of cancer prevention, treatment, and outcomes.

Journal Article

Computational Modeling and Multilevel Cancer Control Interventions

This chapter presents an overview of computational modeling as a tool for multilevel cancer care and intervention research.

Journal Article

Introduction: Understanding and Influencing Multilevel Factors Across the Cancer Care Continuum

Health care in the United States is notoriously expensive while often failing to deliver the care recommended in published guidelines.

Journal Article

Pediatric Cancer Hospitalizations, 2009

This Statistical Brief presents data from the Healthcare Cost and Utilization Project (HCUP) on hospital stays for cancer care in individuals under 18 years of age in 2009.

Journal Article

Cancer Hospitalizations for Adults, 2009

Cancer is the leading cause of death among men and women under age 85.

Journal Article

Effects of Direct-To-Consumer Advertising and Clinical Guidelines on Appropriate Use of Human Papillomavirus DNA Tests

Direct to consumer advertising was associated with increased overall use of a cervical cancer-screening test; clinical guidelines were associated with increased appropriate use.

Journal Article

Use of Human Papillomavirus Vaccines Among Young Adult Women in the United States: An Analysis of the 2008 National Health Interview Survey

The study found that HPV vaccine coverage among young adult women was low overall, and lower among the uninsured. Public financing and care provision programs are needed to expand vaccine coverage among uninsured women.

Journal Article

Human Papillomavirus Vaccine Uptake Among 9- to 17-Year-Old Girls: National Health Interview Survey, 2008

Less than one quarter of girls aged 9-17 years had initiated HPV vaccination by the end of 2008. Efforts to increase uptake should encourage providers to educate parents and promote access to reduced-cost vaccines.

Journal Article

Knowledge and Intention to Participate in Cervical Cancer Screening After the Human Papillomavirus Vaccine

Assesses women's knowledge of the need for cervical cancer screening after HPV vaccination, describes Pap test intentions of vaccinated women, and evaluates whether knowledge and intentions differ across groups at greatest risk for cervical cancer.

Journal Article

Association Between Physician Specialty and Uptake of New Medical Technologies: HPV Tests in Florida Medicaid

Uptake of new cervical cancer screening protocols can occur quickly among traditionally underserved groups and may be aided by early adoption by specialists.