Measuring Outcomes and Health-Related Quality of Life

Published in: Changing the U.S. Health Care System: Key Issues in Health Services Policy and Management, 2nd Ed. / Edited by R.M. Andersen, T.H. Rice, G.R. Kominski (San Francisco, CA: Jossey-Bass Inc., 2001), Chapter 6, p. 127-149

by Patricia A. Ganz, Mark Litwin

Read More

Access further information on this document at

This article was published outside of RAND. The full text of the article can be found at the link above.

Until recently, and with the exception of a few studies already cited, health-related quality of life (HRQL) has been included infrequently in traditional health services research. The expansion and development of HRQL measurement has emerged primarily from clinical research. What is needed urgently is careful and appropriate inclusion of HRQL outcomes in traditional health services research. Similarly, researchers in clinical settings who are measuring HRQL should account for the structure and process of care in designing their research and data collection. As indicated throughout this chapter, the potential for accomplishing this goal is on the horizon.

This report is part of the RAND Corporation External publication series. Many RAND studies are published in peer-reviewed scholarly journals, as chapters in commercial books, or as documents published by other organizations.

Our mission to help improve policy and decisionmaking through research and analysis is enabled through our core values of quality and objectivity and our unwavering commitment to the highest level of integrity and ethical behavior. To help ensure our research and analysis are rigorous, objective, and nonpartisan, we subject our research publications to a robust and exacting quality-assurance process; avoid both the appearance and reality of financial and other conflicts of interest through staff training, project screening, and a policy of mandatory disclosure; and pursue transparency in our research engagements through our commitment to the open publication of our research findings and recommendations, disclosure of the source of funding of published research, and policies to ensure intellectual independence. For more information, visit

The RAND Corporation is a nonprofit institution that helps improve policy and decisionmaking through research and analysis. RAND's publications do not necessarily reflect the opinions of its research clients and sponsors.