Ethical Community-Engaged Research

A Literature Review

Published in: American Journal of Public Health, v. 103, no. 12, Dec. 2013, p. e7-e14

Posted on RAND.org on January 01, 2013

by Lisa Mikesell, Elizabeth Bromley, Dmitry Khodyakov

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Health research has relied on ethical principles, such as those of the Belmont Report, to protect the rights and well-being of research participants. Community-based participatory research (CBPR), however, must also consider the rights and well-being of communities. This requires additional ethical considerations that have been extensively discussed but not synthesized in the CBPR literature. We conducted a comprehensive thematic literature review and summarized empirically grounded discussions of ethics in CBPR, with a focus on the value of the Belmont principles in CBPR, additional essential components of ethical CBPR, the ethical challenges CBPR practitioners face, and strategies to ensure that CBPR meets ethical standards. Our study provides a foundation for developing a working definition and a conceptual model of ethical CBPR.

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