The Value of Consent for Biobanking

Published in: Nature Human Behavior (2021). doi: 10.1038/s41562-021-01163-z

Posted on RAND.org on September 21, 2021

by Elizabeth Bromley, Dmitry Khodyakov

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Biobanks facilitate large-scale tests of hypotheses that may advance health, but whether biobanking participants adequately comprehend the potential uses of their data should concern researchers and the public. Consent matters because it provides a singular safeguard and a participatory mechanism to influence science's production of new forms of power.

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