Treatment Goals for Rheumatoid Arthritis

Patient Engagement and Goal Collection

Zachary Predmore, Emily K. Chen, Thomas W. Concannon, Suzanne Schrandt, Susan J. Bartlett, Clifton O. Bingham, Richard Z. Xie, Richard H. Chapman, Lori Frank

ResearchPosted on rand.org May 4, 2023Published in: Journal of Comparative Effectiveness Research, e220097 (2023). doi: 10.57264/cer-2022-0097

Aim

We developed the Patient-Engaged Health Technology Assessment strategy for survey-based goal collection from patients to yield patient-important outcomes suitable for use in multi-criteria decision analysis.

Methods

Rheumatoid arthritis patients were recruited from online patient networks for proof-of-concept testing of goal collection and prioritization using a survey. A Project Steering Committee and Expert Panel rated the feasibility of scaling to larger samples.

Results

Survey respondents (n=47) completed the goal collection exercise. Finding effective treatments was rated by respondents as the most important goal, and reducing stiffness was rated as the least important. Feedback from our steering committee and expert panel support the approach's feasibility for goal identification and ranking.

Conclusion

Goals relevant for treatment evaluation can be identified and rated for importance by patients to permit wide input from patients with lived experience of disease.

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Document Details

  • Copyright: Innovation and Value Initiative
  • Publisher: Becaris Publishing
  • Availability: Non-RAND
  • Year: 2023
  • Pages: 12
  • Document Number: EP-70058

Research conducted by

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