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To date, no central database captures information about stored tissue samples. This handbook serves as a national resource, to bring together for the first time, in a single document, information about tissue storage in the United States. It provides information about several aspects of stored tissue samples, such as how many samples exist in the United States, where they are, who has access to them, and for what purposes they are used. A conservative estimate from the tissue collections described in this book is that more than 307 million specimens from more than 178 million cases are stored in the United States, accumulating at a rate of more than 20 million per year. This handbook will be a valuable resource for researchers who require tissue samples for studies in genetics, cancer, immunology, physiology, and cell biology, among many other disciplines. In addition, it should be useful to policymakers, physicians, and other professionals in fields related to health care.
Table of Contents
Preface PDF
Figures PDF
Tables PDF
Summary PDF
Acknowledgements
Acknowledgments PDF
Abbreviations PDF
Chapter One
Introduction PDF
Chapter Two
Methods PDF
Chapter Three
Large Tissue Banks, Repositories, and Core Facilities PDF
Chapter Four
Tumor Registries PDF
Chapter Five
Tissue Collections Created from Longitudinal and Individual Research Studies PDF
Chapter Six
Pathology Specimens PDF
Chapter Seven
State Screening Laboratories and Forensic Dna Banks PDF
Chapter Eight
Cryopreservation Facilities/Storage Banks PDF
Chapter Nine
Organ Banks/Blood Banks PDF
Chapter Ten
Conclusions PDF
Appendix A
Quantity of Stored Tissue Samples in the United States PDF
Appendix B
Overall Summary of Stored Tissue Samples in the United States PDF
Appendix C
Summary of Tissue Banks/Repositories by Tissue Type PDF
Appendix D
Alphabetical Listing of Tissue Banks/Repositories and Contacts PDF
Appendix E
Alphabetical Listing by State of Tissue Banks Described in Chapter Three PDF
Appendix F
Tumor Registries by State PDF
Appendix G
Alphabetical Listing by State of Longitudinal Studies and Research Projects That Simultaneously Create Tissue Banks PDF
Appendix H
Transplant Organ and Tissue Banks by State PDF
Chapter I
Cryopreservation Storage Facilities and Fertility Clinics by State PDF
Appendix J
Stored Tissue Sample Web Sites PDF
References PDF
Index PDF
Research conducted by
The research was supported by the White House Office of Science and Technology Policy and performed under the auspices of RAND's Science and Technology unit.
This report is part of the RAND Corporation monograph report series. The monograph/report was a product of the RAND Corporation from 1993 to 2003. RAND monograph/reports presented major research findings that addressed the challenges facing the public and private sectors. They included executive summaries, technical documentation, and synthesis pieces.
The RAND Corporation is a nonprofit institution that helps improve policy and decisionmaking through research and analysis. RAND's publications do not necessarily reflect the opinions of its research clients and sponsors.