Mobile Phones and Smartphone Apps Hold Promise for Allowing Patient Participation in Improving Medical Record Matching
Aug 22, 2018
Despite widespread adoption of electronic health records and increasing exchange of health care data, the benefits of interoperability and health information technology have been hampered by the inability to reliably match patients and their records. The Pew Charitable Trusts contracted with the RAND Corporation to investigate "patient-empowered" approaches to record matching — solutions that have some additional, voluntary role for patients beyond simply supplying demographics to their health care providers — and to select a promising solution for further development and pilot testing. After extensive consultation with a variety of experts, researchers did not identify a "silver bullet" or achieve consensus on a single solution. Instead, this report recommends adopting a three-stage approach that aims to improve the quality of identity information, establish new smartphone app functionality to facilitate bidirectional exchange of identity information and health care data between patients and providers, and create advanced functionality to further improve value. The report also suggests that because the solution contains multiple components involving diverse stakeholders, a governance mechanism likely will be needed to provide leadership, track pilot tests, and evaluation, as well as to convene key stakeholders to build consensus where consensus is needed.
This report identified ten potential patient-empowered solutions to improve record matching, evaluated them using 11 criteria, and proposed a three-stage solution combining elements of several approaches.
These potential solutions varied greatly in the level of detail and experience being tested. Application of evaluation criteria found notable strengths and weaknesses with every solution and, on balance, a reasonable argument could be made to further develop most of them. Given high uncertainty as to the extent to which any specific solution can ultimately succeed, further investigation, development, and pilot testing of a range of solutions are warranted.
A promising approach is to advance a three-stage solution that leverages mobile phones and smartphones and aims to (1) improve the quality of identity information used for record matching, (2) establish new functionalities of smartphone apps to facilitate transfer of this information to providers, and (3) create advanced app functionality to further improve record matching and address other evaluation criteria (e.g., likelihood of adoption, sustainability).
Specific recommendations include those that will advance the selected three-stage solution through development and pilot testing by:
Two additional recommendations intended to help accelerate efforts to improve record matching are: