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>End of Life Care

End of Life Care

End of Life Care

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Advance Directives
Health, Health Care, and Aging
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Journal Article

Jun 21, 2023

Advance Care Planning Among Sexual Minority Men: Sociodemographic, Health Care, and Health Status Predictors

There is a dearth of contemporary information about advance care planning among sexual minority men, a population with disparities in health care and health status. We sought to address some of these gaps in a large, longitudinal cohort.
Journal Article

May 4, 2023

Patient-Reported Quality Measures for Palliative Care: The Time Is Now

A recent CMS analysis revealed a lack of patient-reported measures in palliative care, particularly in symptom management and communication. We used a patient-centered approach to develop and test two measures for patients receiving palliative care.
News Release

Feb 27, 2023

Care Experiences Are Worse in For-Profit Hospices Than in Not-for-Profit Hospices

Family caregivers of patients treated by more than 3,100 U.S. hospices reported worse care experiences on average from for-profit hospices across all of the domains assessed, including help for pain and getting timely care.
Journal Article

Oct 24, 2022

"If We Turned Our Backs, They Would Ignore Our Wishes": Bereaved Family Perceptions of Concordance of Care at the End of Life

The purpose of this study was to characterize decedent wishes for care at the end of life and to examine next of kin narratives of their loved ones' perceptions of whether wishes were honored.
Journal Article

Jun 1, 2022

Evaluation of a Home-Based, Nurse Practitioner–led Advanced Illness Care Program

Evaluation of a nurse-led, home-based serious illness care program (Advanced Illness Care) at UPMC, a health system in Pittsburgh, PA.
Journal Article

Mar 16, 2022

POLST Completion and Continuity in California Nursing Homes

We used MDS 2011–2016 linked to California Section S to describe POLST completion, cardiopulmonary resuscitation and do not resuscitate orders, invalid POLST documents, and switches in POLST content across the population of California NH residents.
Journal Article

Mar 16, 2022

Care Preferences in Physician Orders for Life Sustaining Treatment in California Nursing Homes

Physician Orders for Life-Sustaining Treatment (POLST) facilitates documentation and transition of patients' life-sustaining treatment orders across care settings. We describe the orders within POLST among all nursing home residents in California from 2011 to 2016.
Tool

Nov 2, 2021

RAND Serious Illness Survey

The RAND Serious Illness Survey assesses the care experiences of individuals who receive care from programs that provide serious illness care to patients in their homes.
Journal Article

Apr 21, 2021

Association Between Receipt of Emotional Support and Caregivers' Overall Hospice Rating

"Too much emotional support" is not always viewed negatively in consumer ratings of hospice care.
Journal Article

Apr 7, 2021

The Role of Regional and State Initiatives in Nursing Home Advance Care Planning Policies

We examined whether state and regional advance care planning initiatives play a role in the presence of "do not administer antibiotics" orders for nursing home residents at the end of life.
Journal Article

Apr 7, 2021

Improving Care Experiences for Patients and Caregivers at End of Life: A Systematic Review

Previous reviews examined palliative care improvements or available measures but none explicitly on improving care experiences. We reviewed literature on improving patient and/or caregiver end-of-life care experiences.
Journal Article

Mar 31, 2021

Bereaved Family More Likely to Report "Too Little" Care Than "Too Much" Care at the End of Life

Interviews with family members about their loved one's end-of-life care found that a majority thought he or she received the right amount of care. One in six said their family member received too little care.

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