End of Life Care

213 Results

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Research

Jun 24, 2025

Psychiatric Advance Directives: A Review of the Evidence

In this review of empirical and conceptual literature, the authors identify the potential and realized benefits of psychiatric advance directives, the barriers to their adoption and implementation, and promising practices for implementation.
Tool

Apr 4, 2025

Serious Illness Survey for Community-Based Care

The Serious Illness Survey for Community-Based Care is available in full and abridged versions. The survey materials are available in English and Spanish.
Research

Feb 17, 2025

Sociodemographic Disparities in the Use of Hospice by U.S. Nursing Home Residents: A Systematic Review

We conducted a review of English-language, peer-reviewed articles 2008 to 2023 describing variation in NH hospice use to characterize disparities and inform educational and quality initiatives to improve End-of-Life care in NHs.
Research

Nov 7, 2024

Roles of Chaplains and Clergy in Spiritual Care for African Americans in Hospice: A Pilot Study

We examined who provides spiritual care to African American hospice patients and caregivers. We conducted a pilot study with a community hospice in the South and interviewed caregivers, clergy and chaplains.
Research

Sep 19, 2024

Association Between Physician Age and Patterns of End-of-Life Care Among Older Americans

Using a nationally representative sample of Medicare beneficiaries, we examined the association between physician age and patterns of end of life (EOL) care with a broad range of EOL care measures.
Research

Aug 14, 2024

Prognostication in Alzheimer's Disease and Related Dementias

Accurate 6-month prognostication can enhance access to hospice for people living with Alzheimer’s Disease or related dementias, including those who have a different primary diagnosis. Therefore, prognostication must be reconceptualized.
Research

Jun 26, 2024

Racial Differences in Treatment Intensity at the End of Life Among Older Adults with Heart Failure: Evidence from the Health and Retirement Study

We compared treatment intensity between Black and White older adults with heart failure (HF) near the end of life, finding that Black HF patients were more likely to spend time on life support and die in a hospital than White HF patients.
Research

Apr 25, 2024

Effects of a Web-Mail Mode on Response Rates and Responses to a Care Experience Survey: Results of a Randomized Experiment

Our study tested a sequential web-mail mode for administering a patient and family care experience survey in the hospice setting and examined its effects on response rates and reported perceptions of the quality of care.
Research

Feb 12, 2024

Changes in Hospice Care Experiences During the COVID-19 Pandemic

We examine how the COVID-19 pandemic may have influenced the characteristics of patients receiving hospice care, the settings in which they received care, and their care experiences using national data from the CAHPS Hospice Survey.
Research

Feb 5, 2024

Electronic Health Record (EHR)-based PROMIS Measures Among Neurology Clinic Decedents and Survivors: A Retrospective Cohort Analysis

Assessing symptom burden provides an opportunity to understand clinical decline,particularly as people approach the end of life. We sought to understand whether symptoms reported by patients can be used to assess decline in health.
Research

Dec 4, 2023

Hospice Care Experiences Among Medicare Decedents With and Without COVID-19, 2020–2021

Care experiences declined in 2020-2021 by a small amount for hospice patients without COVID-19 and by a medium-to-large amount for patients with COVID-19. Differences in care experience between patients with and without COVID-19 narrowed over time.
Research

Nov 17, 2023

Concurrent Hospice and Dialysis Care: Considerations for Implementation

We developed a conceptual model for concurrent hospice and dialysis care and a corresponding resource list.

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End of Life Care

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Psychiatric Advance Directives: A Review of the Evidence

Serious Illness Survey for Community-Based Care

Sociodemographic Disparities in the Use of Hospice by U.S. Nursing Home Residents: A Systematic Review

Roles of Chaplains and Clergy in Spiritual Care for African Americans in Hospice: A Pilot Study

Association Between Physician Age and Patterns of End-of-Life Care Among Older Americans

Prognostication in Alzheimer's Disease and Related Dementias

Racial Differences in Treatment Intensity at the End of Life Among Older Adults with Heart Failure: Evidence from the Health and Retirement Study

Effects of a Web-Mail Mode on Response Rates and Responses to a Care Experience Survey: Results of a Randomized Experiment

Changes in Hospice Care Experiences During the COVID-19 Pandemic

Electronic Health Record (EHR)-based PROMIS Measures Among Neurology Clinic Decedents and Survivors: A Retrospective Cohort Analysis

Hospice Care Experiences Among Medicare Decedents With and Without COVID-19, 2020–2021

Concurrent Hospice and Dialysis Care: Considerations for Implementation

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End of Life Care

End of Life Care

Related Topics

Explore RAND’s Work on this Topic

Error

Psychiatric Advance Directives: A Review of the Evidence

Serious Illness Survey for Community-Based Care

Sociodemographic Disparities in the Use of Hospice by U.S. Nursing Home Residents: A Systematic Review

Roles of Chaplains and Clergy in Spiritual Care for African Americans in Hospice: A Pilot Study

Association Between Physician Age and Patterns of End-of-Life Care Among Older Americans

Prognostication in Alzheimer's Disease and Related Dementias

Racial Differences in Treatment Intensity at the End of Life Among Older Adults with Heart Failure: Evidence from the Health and Retirement Study

Effects of a Web-Mail Mode on Response Rates and Responses to a Care Experience Survey: Results of a Randomized Experiment

Changes in Hospice Care Experiences During the COVID-19 Pandemic

Electronic Health Record (EHR)-based PROMIS Measures Among Neurology Clinic Decedents and Survivors: A Retrospective Cohort Analysis

Hospice Care Experiences Among Medicare Decedents With and Without COVID-19, 2020–2021

Concurrent Hospice and Dialysis Care: Considerations for Implementation

Oops! An unexpected error has occurred.