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Palliative Care

Journal Article
Experiences with Telehealth for Outpatient Palliative Care: Findings from a Mixed-Methods Study of Patients and Providers Across the United States
The purpose of this mixed-methods study was to examine and compare telehealth experiences among outpatient palliative care programs and their patients in the United States.
Oct 25, 2022
Journal Article
"Palliative Care Is the Only Medical Field That I Feel Like I'm Treated As a Person, Not As a Black Person": A Mixed-Methods Study of Minoritized Patient Experiences with Palliative Care
The goal of this mixed-methods study was to examine differences in patient experiences by race/ethnicity in palliative care and to qualitatively explore minoritized patient experiences with care for a serious illness.
Oct 24, 2022
Journal Article
Incorporating the Patient and Caregiver Voice in Palliative Care Quality Measure Development
As part of a national effort to develop palliative care quality metrics for use in accountability programs, we sought to develop survey items assessing patients' experiences of outpatient palliative care, incorporating the patient's voice.
Oct 24, 2022
Journal Article
Evaluation of a Home-Based, Nurse Practitioner–led Advanced Illness Care Program
Evaluation of a nurse-led, home-based serious illness care program (Advanced Illness Care) at UPMC, a health system in Pittsburgh, PA.
Jun 1, 2022
Journal Article
Examining the Course of Transitions from Hospital to Home-Based Palliative Care: A Mixed Methods Study
Mixed methods study of transitions from hospital to home for palliative care/hospice.
Jun 1, 2022
Journal Article
Clinicians' Perceptions of Collaborative Palliative Care Delivery in Chronic Kidney Disease
In interviews with clinicians, they expressed barriers to delivering chronic kidney disease care. To address barriers, clinicians outlined intervention points, such as building models, and structural triggers to identify patients who may be appropriate for palliative care.
Jun 1, 2022
Journal Article
Use of Theoretical Frameworks in the Development and Testing of Palliative Care Interventions
To document the prevalence and application of theoretical frameworks in developing and testing palliative care interventions, we conducted a secondary analysis of previously published systematic reviews of palliative care randomized clinical trials.
Jun 1, 2022
Journal Article
Expert Panel Consensus on Management of Advanced Cancer-Related Pain in Individuals With Opioid Use Disorder
We engaged experts using an online modified Delphi approach to develop consensus on the appropriateness of strategies for managing cancer pain in individuals with co-occurring advanced cancer and opioid use disorder.
Jan 4, 2022
Tool
Serious Illness Survey for Home-Based Programs
RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes.
Nov 2, 2021
Tool
Serious Illness Survey for Home-Based Programs: Spanish-Language Version
RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes. This is the Spanish version of the survey tool.
Nov 2, 2021
Journal Article
Consensus-based Approach to Managing Opioids, Including Opioid Misuse and Opioid Use Disorder, in Patients with Serious Illness: Protocol for a Modified Delphi Process
Using a modified Delphi approach, we created seven patient cases that capture important management challenges in individuals with serious illness prescribed opioid therapy.
Sep 22, 2021
Research Brief
New Patient-Centered Quality Measures for Office-Based Palliative Care
Office-based palliative care use has expanded dramatically in the past 20 years. Palliative care programs will soon be able to measure their patients' experience of care and use those data to assess the quality of care and launch improvement efforts.
Sep 13, 2021
Report
MACRA Palliative Care Quality Measure Development—Testing Summary Report: Measure Name: Receiving Desired Help for Pain
The authors describe the results of their national beta field test for a performance measure designed to assess the extent to which patients who used ambulatory palliative care received the help they wanted for their pain.
Sep 3, 2021
Report
MACRA Palliative Care Quality Measure Development—Testing Summary Report: Measure Name: Feeling Heard and Understood
The authors describe the results of their national beta field test for a performance measure designed to assess the extent to which patients who used ambulatory palliative care felt heard and understood by their palliative care provider and team.
Sep 3, 2021
Journal Article
Association Between Receipt of Emotional Support and Caregivers' Overall Hospice Rating
"Too much emotional support" is not always viewed negatively in consumer ratings of hospice care.
Apr 21, 2021
Journal Article
Improving Care Experiences for Patients and Caregivers at End of Life: A Systematic Review
Previous reviews examined palliative care improvements or available measures but none explicitly on improving care experiences. We reviewed literature on improving patient and/or caregiver end-of-life care experiences.
Apr 7, 2021
Journal Article
Bereaved Family More Likely to Report "Too Little" Care Than "Too Much" Care at the End of Life
Interviews with family members about their loved one's end-of-life care found that a majority thought he or she received the right amount of care. One in six said their family member received too little care.
Mar 31, 2021
Journal Article
Racial Differences in End-of-Life Care Quality Between Asian Americans and Non-Hispanic Whites in San Francisco Bay Area
Compared with caregivers of non-Hispanic whites, caregivers of Asian decedents reported unmet needs for caregiver support and lack of respect for cultural traditions and religious/spiritual beliefs.
Mar 2, 2021
Journal Article
Hospice Care Experiences Among Cancer Patients and Their Caregivers
Opportunities exist to improve hospice care for symptom palliation and training for caregivers when their family members are at home or in an ALF setting. Efforts to improve care for cancer patients in the NH and ALF setting are especially needed.
Feb 26, 2021
Journal Article
Negotiating the 'Buffet' of Choice: Advances in Technology and End-of-Life Decision-Making in the Intensive Care Unit Setting
This article explores medical decision-making in the setting of the intensive care unit (ICU) drawing on ethnographic data of ICUs as well as interviews with family members of critically ill patients as and clinicians.
Sep 3, 2020

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Research conducted by

RAND Health Care