In interviews with clinicians, they expressed barriers to delivering chronic kidney disease care. To address barriers, clinicians outlined intervention points, such as building models, and structural triggers to identify patients who may be appropriate for palliative care.
To document the prevalence and application of theoretical frameworks in developing and testing palliative care interventions, we conducted a secondary analysis of previously published systematic reviews of palliative care randomized clinical trials.
We engaged experts using an online modified Delphi approach to develop consensus on the appropriateness of strategies for managing cancer pain in individuals with co-occurring advanced cancer and opioid use disorder.
RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes.
RAND Corporation researchers developed and field-tested a survey to assess the experiences of individuals who receive care from programs that provide serious illness care to patients in their homes. This is the Spanish version of the survey tool.
Using a modified Delphi approach, we created seven patient cases that capture important management challenges in individuals with serious illness prescribed opioid therapy.
Office-based palliative care use has expanded dramatically in the past 20 years. Palliative care programs will soon be able to measure their patients' experience of care and use those data to assess the quality of care and launch improvement efforts.
The authors describe the results of their national beta field test for a performance measure designed to assess the extent to which patients who used ambulatory palliative care received the help they wanted for their pain.
The authors describe the results of their national beta field test for a performance measure designed to assess the extent to which patients who used ambulatory palliative care felt heard and understood by their palliative care provider and team.
Previous reviews examined palliative care improvements or available measures but none explicitly on improving care experiences. We reviewed literature on improving patient and/or caregiver end-of-life care experiences.
Interviews with family members about their loved one's end-of-life care found that a majority thought he or she received the right amount of care. One in six said their family member received too little care.
Compared with caregivers of non-Hispanic whites, caregivers of Asian decedents reported unmet needs for caregiver support and lack of respect for cultural traditions and religious/spiritual beliefs.
Opportunities exist to improve hospice care for symptom palliation and training for caregivers when their family members are at home or in an ALF setting. Efforts to improve care for cancer patients in the NH and ALF setting are especially needed.
This article explores medical decision-making in the setting of the intensive care unit (ICU) drawing on ethnographic data of ICUs as well as interviews with family members of critically ill patients as and clinicians.
This review of the scholarly and empirical literature as well as a growing body of research examining adjustment to the prospect of the end of life support the concept of dyads, where one member of a mutual partnership is experiencing losses in the context of life-threatening illness while the other member goes through adjustments.
Hospice characteristics associated with strong performance on Hospice Item Set measures differ from those associated with strong performance on CAHPS measures. Providing professional staff visits in the last two days of life is associated with high performance in both quality domains.
Important opportunities exist to improve quality of hospice care in nursing homes and assisted-living facilities. Quality improvement and regulatory interventions targeting these settings are needed to ensure that all hospice decedents and their family receive high-quality, patient- and family-centered hospice care.
