Black and Hispanic patients are more likely to receive care from poorer-quality hospices. And their family caregivers are less likely to receive the right amount of emotional and religious support in hospice care. However, caregivers of black and Hispanic patients report similar or better experiences than caregivers of white patients within a given hospice.
This article describes the current status of home-based medical care in the United States and offers a brief narrative of a fictional homebound patient and the health events and fragmented care she faces.
This report describes development of the Hospice Experience of Care Survey, field test design, procedures, analytic methods and findings, and the final survey for national implementation by the Centers for Medicare & Medicaid Services.
There are times when no amount of care, however cutting-edge it is, will save a patient. In these instances, further critical care is said to be “futile.” This type of treatment is not uncommon in intensive care units, and that raises some uncomfortable questions.
Understanding how patients experience care can encourage delivery of high-quality services. It also helps payers, including the Centers for Medicare & Medicaid Services, ensure that they pay for effective and efficient care.
Karl Lorenz, a professor at the Pardee RAND Graduate School, discusses how to improve palliative care training for health practitioners and better engage patients in the health care decisionmaking process.