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Palliative Care

Journal Article

Negotiating the 'Buffet' of Choice: Advances in Technology and End-of-Life Decision-Making in the Intensive Care Unit Setting

This article explores medical decision-making in the setting of the intensive care unit (ICU) drawing on ethnographic data of ICUs as well as interviews with family members of critically ill patients as and clinicians.

Sep 3, 2020
Journal Article

Dyadic Model of Adaptation to Life-Limiting Illness

This review of the scholarly and empirical literature as well as a growing body of research examining adjustment to the prospect of the end of life support the concept of dyads, where one member of a mutual partnership is experiencing losses in the context of life-threatening illness while the other member goes through adjustments.

Jun 26, 2020
Journal Article

Differences in Caregiver Reports of the Quality of Hospice Care Across Settings

Important opportunities exist to improve quality of hospice care in nursing homes and assisted-living facilities. Quality improvement and regulatory interventions targeting these settings are needed to ensure that all hospice decedents and their family receive high-quality, patient- and family-centered hospice care.

Jun 25, 2020
Journal Article

Characteristics of Hospices Providing High-Quality Care

Hospice characteristics associated with strong performance on Hospice Item Set measures differ from those associated with strong performance on CAHPS measures. Providing professional staff visits in the last two days of life is associated with high performance in both quality domains.

Jun 25, 2020
Journal Article

Palliative Care and Infection Management at End of Life in Nursing Homes: A Descriptive Survey

The aim of this study was to describe the current status of how nursing homes integrates palliative care and infection management at end of life across the nation.

Mar 19, 2020
Journal Article

Health System and Beneficiary Costs Associated With Intensive End-of-Life Medical Services

The objective of this paper is to quantify expected beneficiary and health system costs incurred in association with receipt of intensive medical services in the last month of life.

Mar 11, 2020
Report

Development of Palliative Care Quality Measures for Outpatients in a Clinic-Based Setting: A Report on Information Gathering Activities

This report summarizes information gathering activities completed as of September 2019. It provides background information on the importance of and need for development of quality measures for palliative care based on patient-reported experience.

Feb 25, 2020
Brochure

Effecting Change, Improving Health

The RAND Corporation is dedicated to transforming the wellbeing of all people by improving health care systems in the United States and abroad.

Feb 7, 2020
Journal Article

A Systematic Review in Support of the National Consensus Project Clinical Practice Guidelines for Quality Palliative Care, Fourth Edition

A substantial body of evidence exists to support clinical practice guidelines for quality palliative care but the quality of evidence is limited.

Mar 26, 2019
News Release

Growing Evidence Supports Best Practices in Palliative Care

A rapidly aging U.S. population with complex care needs will likely accelerate emphasis on palliative care services. A review of palliative care research found substantial evidence to support clinical practice guidelines and was incorporated into the new edition of the guidelines.

Oct 31, 2018
Periodical

RAND Review: March-April 2018

This issue features a Q&A with Michael Rich, Soledad O'Brien, and Francis Fukuyama on the perils of truth decay, and a story on the trend toward unretirement among U.S. workers. The Voices column features Gulrez Shah Azhar on environmental refugees.

Mar 5, 2018
Journal Article

Changing Structures and Processes to Support Family Caregivers of Seriously Ill Patients

Fundamental changes are needed in the way we identify, assess, and support family caregivers of seriously ill relatives.

Dec 15, 2017
Journal Article

Black and Hispanic Patients Receive Hospice Care Similar to That of White Patients When in the Same Hospices

Black and Hispanic patients received care from poorer quality hospices than white patients.

Aug 1, 2017
News Release

Black and Hispanic Patients More Likely to Use Lower-Quality Hospices

Black and Hispanic patients are more likely to receive care from poorer-quality hospices. And their family caregivers are less likely to receive the right amount of emotional and religious support in hospice care. However, caregivers of black and Hispanic patients report similar or better experiences than caregivers of white patients within a given hospice.

Jul 5, 2017
Journal Article

Development and Feasibility of a Structured Goals of Care Communication Guide

Studies demonstrate the benefits of discussing goals of care and advance care planning, yet many patients with serious illness do not engage in such discussions with healthcare providers.

May 30, 2017
Journal Article

Populations and Interventions for Palliative and End-of-Life Care: A Systematic Review

This evidence review found that palliative care improves outcomes for cancer, dementia, congestive heart failure, and chronic obstructive pulmonary disease.

Sep 12, 2016
Journal Article

Factors Associated with Family Reports of Pain, Dyspnea, and Depression in the Last Year of Life

Family reports of patients' experiences with pain, difficult breathing, and depression near the end of life suggest strategies at the clinical and population level for assessing and managing symptoms.

Aug 23, 2016
Journal Article

The Lack of Documentation of Preferences in a Cohort of Adults Who Died After Ischemic Stroke

Stroke patients' wishes to limit life-sustaining interventions were documented in less than 40 percent of cases in which patients died 30 days after hospital admission.

Apr 22, 2016
Journal Article

A Qualitative Inquiry on Palliative and End-of-Life Care Policy Reform

Despite recent broad interest in reforming end-of-life care policies, the palliative care field faces many challenges to expanding use.

Apr 20, 2016
Journal Article

A Systematic Review of Family Meeting Tools in Palliative and Intensive Care Settings

We systematically reviewed PubMed for articles describing family meeting tools and abstracted information on tool type, usage, and content.

Feb 22, 2016

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