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End-of-Life Care

Individuals with a terminal illness, and the caregivers in their families, face many challenging questions, and the health care they receive can vary widely. For practitioners and policymakers seeking to better understand end-of-life care concerns, RAND researchers address a range of pertinent topics, including quality of care, costs, patient preferences, pain management, best practices, treatment disparities, and access requirements.

Journal Article

Journal Article

Dyadic Model of Adaptation to Life-Limiting Illness

This review of the scholarly and empirical literature as well as a growing body of research examining adjustment to the prospect of the end of life support the concept of dyads, where one member of a mutual partnership is experiencing losses in the context of life-threatening illness while the other member goes through adjustments.

Jun 26, 2020
Journal Article

Journal Article

Characteristics of Hospices Providing High-Quality Care

Hospice characteristics associated with strong performance on Hospice Item Set measures differ from those associated with strong performance on CAHPS measures. Providing professional staff visits in the last two days of life is associated with high performance in both quality domains.

Jun 25, 2020
Journal Article

Journal Article

Differences in Caregiver Reports of the Quality of Hospice Care Across Settings

Important opportunities exist to improve quality of hospice care in nursing homes and assisted-living facilities. Quality improvement and regulatory interventions targeting these settings are needed to ensure that all hospice decedents and their family receive high-quality, patient- and family-centered hospice care.

Jun 25, 2020
Commentary

COVID-19 and End-of-Life Decisions

Resuscitative efforts do not typically save a life. In anticipation of the pandemic surge, hospitals are discussing blanket do-not-resuscitate orders for patients dying from the coronavirus. It's time to discuss the limits of CPR so patients stricken with COVID-19 can make informed end-of-life decisions.

Apr 30, 2020
Journal Article

Journal Article

Palliative Care and Infection Management at End of Life in Nursing Homes: A Descriptive Survey

The aim of this study was to describe the current status of how nursing homes integrates palliative care and infection management at end of life across the nation.

Mar 19, 2020
Journal Article

Journal Article

Health System and Beneficiary Costs Associated With Intensive End-of-Life Medical Services

The objective of this paper is to quantify expected beneficiary and health system costs incurred in association with receipt of intensive medical services in the last month of life.

Mar 11, 2020
Blog

Ink Tank: At RAND, Tattoos Sometimes Reflect the Research

Three RAND experts and one Pardee RAND student explain how their tattoos reflect their research on the problems Marines face, end-of-life care, migration-related issues, and the changing needs of the labor force.

Jan 10, 2020
News Release

Growing Evidence Supports Best Practices in Palliative Care

A rapidly aging U.S. population with complex care needs will likely accelerate emphasis on palliative care services. A review of palliative care research found substantial evidence to support clinical practice guidelines and was incorporated into the new edition of the guidelines.

Oct 31, 2018
Periodical

Periodical

RAND Review: March-April 2018

This issue features a Q&A with Michael Rich, Soledad O'Brien, and Francis Fukuyama on the perils of truth decay, and a story on the trend toward unretirement among U.S. workers. The Voices column features Gulrez Shah Azhar on environmental refugees.

Mar 5, 2018
Journal Article

Journal Article

Black and Hispanic Patients Receive Hospice Care Similar to That of White Patients When in the Same Hospices

Black and Hispanic patients received care from poorer quality hospices than white patients.

Aug 1, 2017
Journal Article

Journal Article

Medicare Beneficiaries With Advanced Lung Cancer Experience Diverse Patterns Of Care From Diagnosis To Death

The substantial variations across sites in patterns of end-of-life care for patients with cancer should be factored in to efforts to improve care.

Aug 1, 2017
Journal Article

Journal Article

End-Of-Life Medical Spending In Last Twelve Months Of Life Is Lower Than Previously Reported

Spending in the last year of life accounts for about 10% of overall costs, but spending in the last three years of life can be as high as 25% of total costs, suggesting the need to reduce the costs of caring for people with chronic conditions.

Jul 27, 2017
Journal Article

Journal Article

End-of-Life Care Planning in Accountable Care Organizations: Associations with Organizational Characteristics and Capabilities

About 60 % of Accountable Care Organizations (ACOs) have some kind of end-of-life care planning processes in place, but only about 20% have established advanced planning processes.

Jul 18, 2017
News Release

News Release

Black and Hispanic Patients More Likely to Use Lower-Quality Hospices

Black and Hispanic patients are more likely to receive care from poorer-quality hospices. And their family caregivers are less likely to receive the right amount of emotional and religious support in hospice care. However, caregivers of black and Hispanic patients report similar or better experiences than caregivers of white patients within a given hospice.

Jul 5, 2017
Journal Article

Journal Article

Development and Feasibility of a Structured Goals of Care Communication Guide

Studies demonstrate the benefits of discussing goals of care and advance care planning, yet many patients with serious illness do not engage in such discussions with healthcare providers.

May 30, 2017
Journal Article

Populations and Interventions for Palliative and End-of-Life Care: A Systematic Review

This evidence review found that palliative care improves outcomes for cancer, dementia, congestive heart failure, and chronic obstructive pulmonary disease.

Sep 12, 2016
Journal Article

Journal Article

Factors Associated with Family Reports of Pain, Dyspnea, and Depression in the Last Year of Life

Family reports of patients' experiences with pain, difficult breathing, and depression near the end of life suggest strategies at the clinical and population level for assessing and managing symptoms.

Aug 23, 2016
Report

Report

Agreement with, and feasibility of, the emerging recommendations from the Living with Breathlessness study: Findings from an online stakeholder survey

This report contains the findings from an online survey of stakeholders who work with people living with advanced COPD to explore agreement with, and feasibility of the recommendations from the Living with Breathlessness study.

Jun 6, 2016
Journal Article

Journal Article

The Future as a Series of Transitions: Qualitative Study of Heart Failure Patients and Their Informal Caregivers

Patients and caregivers view heart failure as a series of transitions, including the shock of first being diagnosed; learning to adjust to life with heart failure; reframing and taking back control of one's life; and understanding and accepting that death is inevitable.

May 1, 2016
Journal Article

Journal Article

The Lack of Documentation of Preferences in a Cohort of Adults Who Died After Ischemic Stroke

Stroke patients' wishes to limit life-sustaining interventions were documented in less than 40 percent of cases in which patients died 30 days after hospital admission.

Apr 22, 2016

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RAND Topic:
End of Life Care

Topic Synonyms:
End-of-Life Care;
EOL;
Terminal Care

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