The authors developed a multistate population simulation and projection model to study trends in Down syndrome–associated Alzheimer's disease and the associated impact on caregiving.
Jul 24, 2023
Lori Frank is an affiliated adjunct behavioral/social scientist at the RAND Corporation. Her current work focuses on methods for incorporating the community perspective into health outcomes research and using community-engaged research to address health equity.
She is senior vice president for Research with the New York Academy of Medicine and she serves on the board of the Personalized Medicine Coalition and the Alzheimer's Foundation of America Medical, Scientific, and Memory Screening Advisory Board. She completed her Health and Aging Policy Fellowship through the American Political Science Association Congressional Fellowship Program with a placement at the National Institutes of Health. She is past president, International Society for Quality of Life Research,
Frank founded and served as program director of the Evaluation and Analysis Program at the Patient-Centered Outcomes Research Institute (PCORI), establishing a research program to examine stakeholder engagement, along with survey research and portfolio analysis functions. Prior to joining PCORI she served as executive director and senior research leader, Center for Health Outcomes Research, with MEDTAP International/United BioSource Corporation, where she managed the scientific and financial performance of the Center, overseeing international operations.
Frank's career has focused on patient-reported outcomes measure development and assessment. She has held research and teaching positions with Georgetown University Department of Psychiatry, the National Institute on Aging, Medimmune LLC/AstraZeneca, and the Veterans Administration. She holds a Ph.D. in human development/gerontology from the Pennsylvania State University and an M.A. in biopsychology from Johns Hopkins University.
Weden, Margaret M., Zetianyu Wang, Lori Frank, Andrew W. Dick, and Elizabeth Marsolais, Modeling the Impact of Research Investment on Down Syndrome–Associated Alzheimer's Disease, RAND Corporation (RR-A2663-1), 2023
Frank L and Concannon TW, "Inclusion in Health Technology Assessments: The First Step Toward Equity," Health Affairs Blog, 2021
Frank, Lori, Thomas W. Concannon, Jordan M. Harrison, and Sarah Zelazny, Policy Decisionmaking in Long-Term Care: Lessons from Infection Control During the COVID-19 Pandemic, RAND Corporation (RR-A2128-1), 2022
Predmore Z, Chen EK, Concannon TW, Schrandt S, Bartlett SJ, Bingham CO, Xie RZ, Chapman RH, Frank L, "Treatment goals for rheumatoid arthritis: patient engagement and goal collection," Journal of Comparative Effectiveness Research, 12(5), 2023
Frank L, Morton SC, Guise -M, Jull J, Concannon TW , Peter Tugwell P, Multi Stakeholder Engagement (MuSE) Consortium, "Engaging Patients and Other Non-Researchers in Health Research: Defining Research Engagement ," Journal of General Internal Medicine, 35(1), 2020
Matthew D. Baird, Melanie A. Zaber, Annie Chen, Andrew W. Dick, Chloe E. Bird, Molly Waymouth, Grace Gahlon, Denise D. Quigley, Hamad Al-Ibrahim, Lori Frank, Research Funding for Women’s Health: Modeling Societal Impact, RAND Corporation (RR-A708-4-v2), 2022
Frank L, Jennings LA, Petersen RC, Majid T, Gilmore-Bykovskyi A, Schicker L, Karlawish J., "Participation of Persons with Dementia and their Caregivers in Research," Journal of the American Geriatrics Society, 69(7), 2021
Frank L, Forsythe L, Ellis L, Schrandt S, Sheridan S, Gerson J, Konopka K, Daugherty S, "Conceptual and practical foundations of patient engagement in research at PCORI," Quality of Life Research, 24(5), 2015