Lori Frank

Photo of Lori Frank
Senior Behavioral Scientist
Washington Office

Education

Ph.D. in human development/gerontology, The Pennsylvania State University; M.A. in psychology/biopsychology, The Johns Hopkins University; B.A. in biology/psychology, University of Delaware

Overview

Lori Frank is a senior behavioral scientist with the RAND Corporation. Her current work is focused on methods for incorporating the consumer perspective into health outcomes research and healthcare valuation.

She is currently President of the International Society for Quality of Life Research, and she serves on the Board of the Personalized Medicine Coalition and the Alzheimer's Foundation of America Medical, Scientific, and Memory Screening Advisory Board. She completed her Health and Aging Policy Fellowship through the American Political Science Association Congressional Fellowship Program with a placement at the National Institutes of Health.

She founded and served as Program Director of the Evaluation and Analysis Program at the Patient-Centered Outcomes Research Institute (PCORI), establishing a research program to examine stakeholder engagement, along with survey research and portfolio analysis functions. Prior to joining PCORI she served as Executive Director and Senior Research Leader, Center for Health Outcomes Research, with MEDTAP International/United BioSource Corporation, where she managed the scientific and financial performance of the Center, overseeing international operations. 

Her career has focused on patient-reported outcomes measure development and assessment. She has held research and teaching positions with Georgetown University Department of Psychiatry, the National Institute on Aging, Medimmune LLC/AstraZeneca, and the Veteran’s Administration. She completed postdoctoral training in Mental Health Services Research with the VA Health Services Research and Development program and Department of Psychiatry. Her Ph.D. is in human development/gerontology from the Pennsylvania State University and her M.A. is in biopsychology from the Johns Hopkins University.

Concurrent Non-RAND Positions

President, International Society for Quality of Life Research

Previous Positions

Director, Evaluation & Analysis, Patient-Centered Outcomes Research Institute; Executive Director, Center for Health Outcomes Research, MEDTAP/United BioSource Corporation

Selected Publications

Frank L, Morton SC, Guise -M, Jull J, Concannon TW , Peter Tugwell P, Multi Stakeholder Engagement (MuSE) Consortium, "Engaging Patients and Other Non-Researchers in Health Research: Defining Research Engagement ," Journal of General Internal Medicine, 35(1), 2020

Frank L, Shubeck E, Schicker M, Webb T, Maslow K, Gitlin L, Huling Hummel C, Kaplan EK LeBlanc B, Marquez M, Nicholson B, O'Brien G, Phillips L, Van Buren B, Epstein-Lubow G. , "Contributions of persons living with dementia to scientific research meetings. Results from the National Research Summit on Care, Services and Supports for Persons with Dementia and their Caregivers.," American Journal of Geriatric Psychiatry, 2019

Frank L, Ashford JW, Bayley P, Borson S, Buschke H, Cohen D, Cummings JL, Davies P, Dean M, Finkel SI, Hyer L, Perry G, Powers RE, Schmitt F, "Genetic Risk of Alzheimer’s Disease: Three wishes now that the genie is out of the bottle," Journal of Alzheimer’s Disease , 66, 2018

Forsythe LP, Frank LB, Tafari AT, Cohen SS, Lauer M, Clauser S, Goertz C, Schrandt S, "Researchers, Patients, and Stakeholders Evaluating Comparative Effectiveness Research: A Mixed-Methods Study of the PCORI Reviewer Experience. ," Value in Health , 21(10), 2018

Forsythe LP, Frank LB, Hemphill R, Tafari AT, Szydlowski V, Lauer M, Goertz C, Clauser S , "Unique Review Criteria and Patient and Stakeholder Reviewers: Analysis of PCORI’s Approach to Research Funding," Value in Health, 21(10), 2018

Forsythe L, Heckert A, Margolis MK, Schrandt S, Frank L, "Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute.," Quality of Life Research, 27, 2017

Frank L, Forsythe L, Ellis L, Schrandt S, Sheridan S, Gerson J, Konopka K, Daugherty S , "Frank L, Forsythe L, Ellis L, Schrandt S, Sheridan S, Gerson J, Konopka K, Daugherty S. Conceptual and practical foundations of patient engagement in research at PCORI ," Quality of Life Research, 24(5), 2015

Frank L, "Raising the bar for self-reported health status," Medical Care, 52(12), 2014

Honors & Awards

  • Health and Aging Policy Fellowship/Congressional Fellowship

Commentary

  • Closeup of hands of a Black doctor shaking hands with a white patient, photo by LumiNola/Getty Images

    Patients Should Have a Role in Deciding the Value of Medicines

    Patients, their family members, and the general public have historically been excluded from contributing to health care value assessment models. But methods for including patient voices in research are far less complicated or demanding than some researchers believe they will be.

    Jul 10, 2020 STAT

  • Multi-ethnic group of women, photo by andresr/Getty Images

    Women and COVID-19: Studying the Impact of Sex and Gender

    Much of current medical evidence is based largely on men. The current COVID-19 pandemic presents a unique opportunity to examine the potential value of asking questions about sex and gender differences to inform ongoing policy decisions.

    Apr 13, 2020 The RAND Blog

  • Mother and daughter look out a window, photo by MangoStar_Studio/Getty Images

    Should You Consider Taking a Loved One Out of a Long-Term Care Facility Now?

    As modern living is changing during this pandemic, so is assisted living. Already, many of us are facing difficult decisions about whether someone we know should stay in an assisted living facility or be taken out due to the coronavirus crisis. If you're in the position to bring someone to hunker down with you, is it even a good idea?

    Mar 30, 2020 NextAvenue

Publications