Lori Frank is an affiliated adjunct behavioral/social scientist at the RAND Corporation. Her current work focuses on methods for incorporating the consumer perspective into health outcomes research and health care valuation and using community engaged research to address health equity.
She is senior vice president, Research, Policy, and Programs with the New York Academy of Medicine and past president, International Society for Quality of Life Research, and she serves on the board of the Personalized Medicine Coalition and the Alzheimer's Foundation of America Medical, Scientific, and Memory Screening Advisory Board. She completed her health and aging policy fellowship through the American Political Science Association Congressional Fellowship Program with a placement at the National Institutes of Health.
Frank founded and served as program director of the Evaluation and Analysis Program at the Patient-Centered Outcomes Research Institute (PCORI), establishing a research program to examine stakeholder engagement, along with survey research and portfolio analysis functions. Prior to joining PCORI she served as executive director and senior research leader, Center for Health Outcomes Research, with MEDTAP International/United BioSource Corporation, where she managed the scientific and financial performance of the Center, overseeing international operations.
Frank's career has focused on patient-reported outcomes measure development and assessment. She has held research and teaching positions with Georgetown University Department of Psychiatry, the National Institute on Aging, Medimmune LLC/AstraZeneca, and the Veterans Administration. She holds a Ph.D. in human development/gerontology from the Pennsylvania State University and an M.A. in biopsychology from the Johns Hopkins University.
Frank L, Jennings LA, Petersen RC, Majid T, Gilmore-Bykovskyi A, Schicker L, Karlawish J. , "Participation of Persons with Dementia and their Caregivers in Research. ," Journal of the American Geriatrics Society. , 69(7), 2021
Frank L, Morton SC, Guise -M, Jull J, Concannon TW , Peter Tugwell P, Multi Stakeholder Engagement (MuSE) Consortium, "Engaging Patients and Other Non-Researchers in Health Research: Defining Research Engagement ," Journal of General Internal Medicine, 35(1), 2020
Frank L, Shubeck E, Schicker M, Webb T, Maslow K, Gitlin L, Huling Hummel C, Kaplan EK LeBlanc B, Marquez M, Nicholson B, O'Brien G, Phillips L, Van Buren B, Epstein-Lubow G. , "Contributions of persons living with dementia to scientific research meetings. Results from the National Research Summit on Care, Services and Supports for Persons with Dementia and their Caregivers.," American Journal of Geriatric Psychiatry, 2019
Frank L, Ashford JW, Bayley P, Borson S, Buschke H, Cohen D, Cummings JL, Davies P, Dean M, Finkel SI, Hyer L, Perry G, Powers RE, Schmitt F, "Genetic Risk of Alzheimer’s Disease: Three wishes now that the genie is out of the bottle," Journal of Alzheimer’s Disease , 66, 2018
Forsythe LP, Frank LB, Tafari AT, Cohen SS, Lauer M, Clauser S, Goertz C, Schrandt S, "Researchers, Patients, and Stakeholders Evaluating Comparative Effectiveness Research: A Mixed-Methods Study of the PCORI Reviewer Experience. ," Value in Health , 21(10), 2018
Forsythe LP, Frank LB, Hemphill R, Tafari AT, Szydlowski V, Lauer M, Goertz C, Clauser S , "Unique Review Criteria and Patient and Stakeholder Reviewers: Analysis of PCORI’s Approach to Research Funding," Value in Health, 21(10), 2018
Forsythe L, Heckert A, Margolis MK, Schrandt S, Frank L, "Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute.," Quality of Life Research, 27, 2017
Frank L, Forsythe L, Ellis L, Schrandt S, Sheridan S, Gerson J, Konopka K, Daugherty S , "Frank L, Forsythe L, Ellis L, Schrandt S, Sheridan S, Gerson J, Konopka K, Daugherty S. Conceptual and practical foundations of patient engagement in research at PCORI ," Quality of Life Research, 24(5), 2015