The Coronavirus Pandemic Highlights Why Family Caregivers Need to Be Integrated into the Health Care Team and Shows Us How to Make It Happen
Jan 5, 2021
|PDF file||0.1 MB||
Use Adobe Acrobat Reader version 10 or higher for the best experience.
The coronavirus disease 2019 (COVID-19) pandemic underscores that long-term care residents and families who are most affected by facility policies are not well represented in decisionmaking. The value of including resident, staff, and family preferences and perspectives in governance of long-term care extends beyond the COVID-19 crisis.
In this Perspective, the author suggests a hybrid model for including long-term care residents and other stakeholders in the governance of their facilities. Long-term care policy could then incorporate these perspectives, reflecting the views of residents and families, in partnership with long-term care administrators and staff.
For infection control, inclusive governance could broaden the focus from infection rates and death to include rates of depression, delirium, cognitive decline, and physical deconditioning. The cultural shift to recognize patients, direct care staff, and families as stakeholders with perspectives to include in decisionmaking could improve infection control practices while also improving health-related quality of life for residents — a cultural shift that is long overdue.
Funding for this research was provided by gifts from RAND supporters and income from operations. The research was conducted by RAND Health Care.
This publication is part of the RAND Corporation Perspective series. RAND Perspectives present expert insights on timely policy issues. All RAND Perspectives undergo peer review to ensure high standards for quality and objectivity.
This document and trademark(s) contained herein are protected by law. This representation of RAND intellectual property is provided for noncommercial use only. Unauthorized posting of this publication online is prohibited; linking directly to this product page is encouraged. Permission is required from RAND to reproduce, or reuse in another form, any of its research documents for commercial purposes. For information on reprint and reuse permissions, please visit www.rand.org/pubs/permissions.
The RAND Corporation is a nonprofit institution that helps improve policy and decisionmaking through research and analysis. RAND's publications do not necessarily reflect the opinions of its research clients and sponsors.