June 21, 2018
Researchers from the RAND Corporation have been awarded a grant to develop a survey to measure the quality of care provided to people with serious illnesses, an issue of increasing importance as the nation's population of frail older individuals grows.
Supported by funding from the Gordon and Betty Moore Foundation, researchers hope to have performance measures developed and tested by the end of 2020. Once complete, the work will be submitted to the National Quality Forum for endorsement for use in national accountability programs.
“Caring for seriously ill people is an urgent priority, as industrialized nations face the challenge of a growing population of frail, older people with prolonged periods of functional dependency,” said Rebecca Anhang Price, co-leader of the project and a senior policy researcher at RAND, a nonprofit research organization.
Although measuring, monitoring and encouraging high quality care is critical for vulnerable populations, to date no standardized measures have been developed for programs that provide care to the seriously ill in community-based settings.
Such a gap is notable given that the Centers for Medicare & Medicaid Services is considering establishing an alternative payment model for care of the seriously ill that will pay programs based on quality and value rather than the volume of care that they provide.
The RAND research project includes a review of the medical literature and interviews with seriously ill individuals, family caregivers and health care providers, as well as a field test of a draft patient and family caregiver survey among community-based programs for the seriously ill.
RAND Health is the nation's largest independent health policy research program, with a broad research portfolio that focuses on population health, health care costs, quality and public health systems, among other topics.