End-of-life Care and Outcomes

Prepared by Southern California Evidence-based Practice Center RAND Corporation ; Principal Investigators, Karl Lorenz ... [Et] Al.]

Published in: Lorenz, K. et al. End-of-Life Care and Outcomes. Evidence Report/Technology Assessment No. 110. (Prepared by the Southern California Evidence-based Practice Center, under Contract No. 290-02-0003.) AHRQ Publication No. 05-E004-2. (Rockville, MD: Agency for Healthcare Research and Quality. Dec. 2004), 651 p

by Karl Lorenz, Joanne Lynn, Paul G. Shekelle, Sally C. Morton, Margaret A. Maglione, Sydney Dy, Ronda G. Hughes, Richard A. Mularski, Lisa R. Shugarman, Virginia C. Sun, et al.

Read More

Access further information on this document at www.ahrq.gov

This article was published outside of RAND. The full text of the article can be found at the link above.

This report addresses the following key questions: 1. What outcome variables are valid indicators of the quality of the end-of-life experience for the dying person and for the surviving loved ones? a. What individual outcome measures are most strongly associated with overall satisfaction with end-of-life care? b. What is the reliability and validity of specific instruments for measuring quality of life or quality of care at the end-of-life? 2. What patient, family, and health care system factors are associated with better or worse outcomes at end of life? a. What individual patient factors (e.g., age, gender, race/ethnicity, underlying illness, education, etc.) are associated with better or worse outcomes at end of life? b. What family factors (e.g., relationship to patient, race/ethnicity, etc.) are associated with better or worse outcomes at end of life, including both outcomes reported by the family and how the family affects outcomes experienced by the patient? c. What health care system factors (e.g., site of care, type of provider, support services, etc.) are associated with better or worse outcomes?

This report is part of the RAND Corporation External publication series. Many RAND studies are published in peer-reviewed scholarly journals, as chapters in commercial books, or as documents published by other organizations.

Our mission to help improve policy and decisionmaking through research and analysis is enabled through our core values of quality and objectivity and our unwavering commitment to the highest level of integrity and ethical behavior. To help ensure our research and analysis are rigorous, objective, and nonpartisan, we subject our research publications to a robust and exacting quality-assurance process; avoid both the appearance and reality of financial and other conflicts of interest through staff training, project screening, and a policy of mandatory disclosure; and pursue transparency in our research engagements through our commitment to the open publication of our research findings and recommendations, disclosure of the source of funding of published research, and policies to ensure intellectual independence. For more information, visit www.rand.org/about/research-integrity.

The RAND Corporation is a nonprofit institution that helps improve policy and decisionmaking through research and analysis. RAND's publications do not necessarily reflect the opinions of its research clients and sponsors.