Community-partnered Approaches to Enhance Chronic Kidney Disease Awareness, Prevention, and Early Intervention

Published in: Advances in chronic kidney disease, v. 15, no. 2, Apr. 2008, p. 153-161

Posted on RAND.org on January 01, 2008

by Roberto B. Vargas, Loretta Jones, Chrystene Terry, Suzanne B. Nicholas, Joel Kopple, Nell Griffith Forge, Anne Reid Griffin, Margo Louis, Lilly Barba, Linda Small, Keith C. Norris

There is a need to increase community involvement in addressing the growing burden of chronic kidney disease (CKD). Community-partnered participatory research (CPPR) is a collaborative approach that equitably involves academic, community, and professional partners in research, and the development of shared goals and of interventional programs to attain these goals. We present a case study of the processes, strategies, and activities concerning the interface of World Kidney Day goals and community- academic partnerships using a CPPR model focused on CKD. The authors show that CPPR methods can be used to (1) bring together community and academic leaders around goal sharing and research agenda development, (2) convene a community/professional conference aimed at knowledge transfer and data collection among partners, and (3) develop workgroups from a diverse group of participants to collaborate in community partnered strategies to reduce the burden of CKD. Participants included health care professionals, patients, faith-based professionals, government employees and officials, academics, caregivers, and community members. Follow-up workgroups developed action plans to address shared concerns. Using CPPR practices and principles, we were able to incorporate World Kidney Day objectives with community-derived goals to develop a community-partnered infrastructure, shared objectives, and workgroups to reduce the burden of chronic kidney disease.

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