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Women with disabilities, a large and growing segment of the U.S. population, are as a group underserved when it comes to the health care services that are appropriate to their needs. Although these needs are well documented, the barriers that may prevent these women from obtaining appropriate care are less understood. This paper describes the major financial issues affecting access to appropriate primary health care for women with disabilities and presents recommended strategies for effectively addressing those issues. The authors find that while the health care financing system explicitly reimburses for specialty care for a disabling condition, it ignores the substantial additional equipment and staffing needed to provide appropriate general health care for women with disabilities. New approaches for financing health care for this population should be considered, along with a careful assessment of the cumulative cost effects of any new approach on the federal Medicare and Medicaid budgets.

Table of Contents

  • Chapter One

    Introduction

  • Chapter Two

    Women with Disabilities: Who Are They and What Are Their Health Care Needs?

  • Chapter Three

    How Is Health Care for Women with Disabilities Covered?

  • Chapter Four

    What Are the Financial Barriers to Health Care for Women with Disabilities?

  • Chapter Five

    Findings, Policy Recommendations, and Future Research Needs

  • Appendix A

    Definitions of Disability According to Datasets Used in This Study

  • Appendix B

    Specialized Health Care Programs for Women with Disabilities

  • Appendix C

    Resources for Information on Health Care for Women with Disabilities

  • Appendix D

    Findings from Focus Groups and Interviews with Women with Disabilities

The research described in this report was conducted within RAND Health for the FISA Foundation.

This report is part of the RAND Corporation White paper series. The white paper was a product of the RAND Corporation from 1993 to 2003 and was meant to convey formally information on a policy issue and to summarize key research findings relevant to pending decisions or policy problems. White Papers drew on a strong body of research and were directed to a specific audience.

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