Online Modified-Delphi

A Potential Method for Continuous Patient Engagement Across Stages of Clinical Practice Guideline Development

Published in: Journal of General Internal Medicine (2021). doi: 10.1007/s11606-020-06514-6

Posted on RAND.org on March 31, 2021

by Sean Grant, Courtney Armstrong, Dmitry Khodyakov

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Patient engagement has become a key component and indicator of high-quality development of clinical practice guidelines (CPGs). Engaging patients in CPG development respects their expertise in the lived experience of clinical conditions and aims to create more patient-centered guideline recommendations. As this area of guideline development has matured, guideline development groups and other healthcare policy stakeholders are interested in shifting from engagement of a limited number of patients at isolated phases of CPG development to more in-depth, continuous engagement of a larger group of patients across all stages of the development process. Frameworks for continuous patient engagement in CPG development have highlighted various approaches to identify the preferences and perspectives of patients, caregivers, and other patient representatives by using surveys, focus groups, and representation on guideline development groups.

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