Sharing and Integrating HIV Client Data Across Provider Organizations to Improve Service Coordination

A Toolkit

by Vivian L. Towe, Clare Stevens, Shira H. Fischer

Download eBook for Free

FormatFile SizeNotes
PDF file 0.4 MB

Use Adobe Acrobat Reader version 10 or higher for the best experience.

Recognizing the potential power of close collaboration, two federal programs that provide support to low-income people with human immunodeficiency virus (HIV)—the Housing Opportunities for Persons With AIDS program of the U.S. Department of Housing and Urban Development and the Ryan White HIV/AIDS Program, overseen by the Health Resources and Services Administration—came together to determine how they could improve outcomes for individuals with HIV who also experience housing instability. The result of that meeting was an effort to encourage more-effective data-sharing and coordination of services across the two programs. This data integration project was carried out with four local partnerships and evaluated by the RAND Corporation. As part of the evaluation, the authors developed this toolkit as a way to share lessons learned and help others who are considering similar efforts to share data across service providers. Although the integration of data systems might seem challenging, it can provide substantial gains in time saved for providers and improved service coordination. The toolkit's authors aim to demystify the process of data integration and make it more accessible to service organizations in general.

Table of Contents

  • Chapter One

    Introduction

  • Chapter Two

    Readiness

  • Chapter Three

    Current Service Coordination Deficiencies

  • Chapter Four

    Technical Decisions

  • Chapter Five

    Enhanced Service Coordination

  • Chapter Six

    Training on Use of Integrated Data System and Service Coordination

  • Chapter Seven

    Quality Monitoring

  • Appendix A

    Sample Client Consent to Share Data

Research conducted by

This research was supported by HRSA and the Minority HIV/AIDS Fund of the U.S. Department of Health and Human Services (HHS) and conducted by RAND Health Care.

This report is part of the RAND Corporation tool series. RAND tools may include models, databases, calculators, computer code, GIS mapping tools, practitioner guidelines, web applications, and various toolkits. All RAND tools undergo rigorous peer review to ensure both high data standards and appropriate methodology in keeping with RAND's commitment to quality and objectivity.

Permission is given to duplicate this electronic document for personal use only, as long as it is unaltered and complete. Copies may not be duplicated for commercial purposes. Unauthorized posting of RAND PDFs to a non-RAND Web site is prohibited. RAND PDFs are protected under copyright law. For information on reprint and linking permissions, please visit the RAND Permissions page.

The RAND Corporation is a nonprofit institution that helps improve policy and decisionmaking through research and analysis. RAND's publications do not necessarily reflect the opinions of its research clients and sponsors.