Measuring Patient-Reported Health Status in Advanced HIV Disease

HIV-PARSE Survey Instrument

by Sandra H. Berry, Samuel A. Bozzette, Ron D. Hays, Anita Stewart, David E. Kanouse

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Interest in using patient reported health status assessments as an outcome in clinical trials of therapies for HIV disease is increasing. This document presents such an assessment, the HIV-PARSE survey instrument. It describes the purpose and development of the instrument, documents field experience and psychometric properties, and provides scoring rules. The actual instrument is included, in English and Spanish. These measures prove to be highly reliable and practical in the context of a clinical trial.

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