Transforming Systems for Parental Depression and Early Childhood Developmental Delays: Findings and Lessons Learned from the Helping Families Raise Healthy Children Initiative
Mar 19, 2013
Improving Cross-System Care for Parental Depression and Early Childhood Developmental Delays Depression affects millions of Americans each year. Untreated parental depression has potentially serious consequences for a parent's well-being, his or her functioning as a parent, the family's functioning, and the children's healthy development. Children of depressed parents are more likely to experience social and emotional problems or delays in cognitive and social development, and develop long-term behavioral problems. In turn, a child's developmental delays can heighten family stress, increasing the parent's risk of depression and perpetuating a cycle that may affect both parent and child. Low-income families, in particular, face an elevated risk for falling into this cycle. Yet the relevant health care systems typically treat parental depression and child developmental problems separately, and thus may miss opportunities to coordinate care for both conditions and improve treatment and outcomes for families, parents, and children in concert.
To address the often co-occurring issues of parental depression and developmental delays, a diverse group of community organizations in the Pittsburgh area undertook an effort to improve system capacity and care for families facing these dual challenges. This initiative — Helping Families Raise Healthy Children — began in 2009 under the auspices of the Allegheny County Maternal and Child Health Care Collaborative, a broad-based community coalition that has been operating since January 2002. The Collaborative has united a variety of organizations, including maternal and child health care providers, health care organizations, policymakers, and others to address concerns related to maternal and child health and the recognition that the problems require system-level change.
As part of the initiative, RAND researchers evaluated the implementation process and the initiative's impact on relevant systems and participating families.
Together with the Collaborative, the three organizing partners for the initiative developed protocols and procedures for implementing the initiative's components of screening and identification, referral, and engagement in relationship-based services. The initiative employed several strategies to support implementation and achieve the desired changes. First, the project team established processes to screen and refer families at risk for depression.
This included selecting a screening tool, developing a cross-system referral protocol, and providing training and ongoing support to early intervention service coordinators on the screening and referral processes. Second, the initiative implemented cross-system trainings to improve providers' capacity to deliver care using a relationship-based approach, which emphasizes parents' and children's issues in the context of their relationship. Third, the initiative convened a learning collaborative for providers from the early intervention and behavioral health systems to support the integration of relationship-based care into practice. Fourth, the initiative conducted extensive outreach to existing and new partners in the community who would be identifying and referring families to early intervention based on the parent's depression risk. Fifth, the initiative attempted to reduce barriers to engagement in treatment by increasing the behavioral health system's capacity for providing in-home care. Finally, to ensure that these processes reflected the perspectives of providers and the targeted families, RAND researchers solicited input from a variety of stakeholders, including a family advisory council, health care providers, and early intervention service coordinators.
To assess implementation, RAND researchers collected data on the number of screenings, referrals, and participants engaged in services and compared these rates to benchmarks synthesized from other relevant studies that employed comparable populations. As shown in Figure 1, the initiative exceeded benchmark percentages in all three areas: 63 percent of parents involved with the early intervention system were screened; 62 percent of parents were identified as needing services or support received referrals; and 71 percent of those referred for services engaged in at least one session.
A closer look at the types of referrals shows that the most common type of referral directed caregivers to relationship-based early intervention services (Figure 2). Team-delivered in-home care (comprehensive services by a team composed of a mental health professional, a mental health worker, and linkages to other services as needed), in-home mobile behavioral health therapy, and community-based services were also common.
Parents referred for these services engaged in treatment at varying rates. Among parents referred for early intervention relationship-based services, engagement rates were especially high: 93 percent received at least one session (Figure 2). Engagement rates from other types of referrals varied, with services provided in the home faring better than those provided elsewhere.
At the system level, the initiative's goals were to develop processes for implementing the initiative's three components and to build capacity for the early intervention and behavioral health systems to improve communication, coordination, and cross-system provider training. To understand factors that aided implementation, the RAND team conducted focus groups with early intervention and behavioral health providers as well as telephone interviews with parents and pre-post surveys with providers who received training. Results of these focus groups, interviews, and surveys are highlighted below:
Parents who screened positive for depression at baseline were given six-month follow-up screens to monitor their ongoing risk for depression and parental stress. Depressive symptoms were reduced both for parents who engaged in relationship-based services within the early intervention or behavioral health systems and for those who did not (Figure 3). In fact, the decline in depression scores was more pronounced for those who did not engage in services. This may be because participant engagement in services was not randomly assigned such that those who engaged in services recognized the long-term nature of their needs.
Thus, differences that appear to be due to engagement in services may be due to self-selection of participants into the "engaged" and "not-engaged" groups. Furthermore, nearly 60 percent of parents who initially screened positive for depression also reported high levels of parental stress. Among parents who completed the six-month follow-up, stress levels decreased, both for parents who engaged in relationship-based services within the early intervention or behavioral health systems and for those who did not. Overall, the reduction of stress and depressive symptoms for all families may reflect a gradual adjustment to identifying a child's developmental delay, or the positive effect of coordination services received by all families served by the initiative.
The Helping Families Raise Healthy Children initiative demonstrates the feasibility of improving cross-system care for parental depression and early childhood developmental delays. The Collaborative will continue efforts to improve care systems within Allegheny County and hopes to serve as a catalyst for other communities across Pennsylvania and throughout the United States to undertake similar efforts. To help generalize lessons from the initiative, the collaborative offered recommendations for state-level and agency-level decisionmakers interested in improving the parent and child health care systems in their jurisdictions (see Table 1). Highlights of the recommendations include state-mandated universal screening for depression in the early intervention system and training for early intervention service coordinators in how to screen for depression using validated screening tools.
|Table 1. Recommendations for Building on the Lessons from the Healthy Families Evaluation|
To further support local and state efforts to improve cross-system care, the RAND team developed "A Toolkit for Implementing Parental Depression Screening, Referral, and Treatment Across Systems." The toolkit provides step-by-step recommendations for developing a cross-systems approach to parental depression, including screening for depression in early intervention, developing cross-system networking and referral processes, and providing relationship-based care within the early intervention and behavioral health systems.