MACRA Palliative Care Quality Measure Development—Testing Summary Report: Measure Name: Feeling Heard and Understood
Sep 3, 2021
Because of the rapid expansion of palliative care as a medical specialty, there has been a growing awareness of and emphasis on the importance of developing quality measures specific to palliative care, especially measures that capture the patient's experience of care. This report summarizes background information on the importance of and need for development of quality measures for palliative care based on patient-reported experience.
Palliative care has expanded rapidly in recent years. Hence, there has been a growing awareness of and emphasis on the importance of developing quality measures specific to palliative care. This report describes information-gathering activities conducted by RAND to develop two measures of palliative care quality for patients receiving such care in outpatient, clinic-based settings.
The authors describe the consensus that has developed for measurement priorities in the palliative care community, provide a summary of clinical practice guidelines, and review the evidence base for palliative care. The authors also review current relevant regulations, existing measures of patient and caregiver experience, findings from a gap analysis on palliative care assessment, and findings from provider focus groups and interviews with patients and caregivers or family members.
Project Background and Overview
Measurement Priorities in Palliative Care
Summary of Clinical Practice Guidelines
Review of Federal Programs
Existing Data Elements and Instruments That Assess Dimensions of Patient Experience Relevant to Palliative Care
Review of Existing Quality Measures and Gap Analysis Summary
Project Team and Roles
Existing Data Elements
Provider Focus Group Guide
Patient/Caregiver Interview Guide
Example Data Elements Mentioned by Focus Group and Interview Participants