Community-based programs that provide care for seriously ill individuals in their homes have grown rapidly. Although measuring, monitoring, and incentivizing high-quality care is critical for seriously ill individuals, before 2020, no standardized measures had been developed for programs that provide care to the seriously ill.

Experts in care of the seriously ill have highlighted the importance of quality measures that assess the person- and family-centeredness of care. Surveys of seriously ill individuals and their family members are an essential means of understanding whether care is person- and family-centered.

RAND Corporation researchers, in close collaboration with Oregon Health and Science University and Yale University, developed and field-tested a survey to assess the care experiences of individuals who receive care from programs that provide serious illness care to patients in their homes. The goal of this work was to develop survey-based measures that assess the quality of care provided by these programs.

Research conducted by

Survey development was funded by the Gordon and Betty Moore Foundation and carried out within the Quality Measurement and Improvement Program in RAND Health Care.

This report is part of the RAND tool series. RAND tools may include models, databases, calculators, computer code, GIS mapping tools, practitioner guidelines, web applications, and various toolkits. All RAND tools undergo rigorous peer review to ensure both high data standards and appropriate methodology in keeping with RAND's commitment to quality and objectivity.

Our mission to help improve policy and decisionmaking through research and analysis is enabled through our core values of quality and objectivity and our unwavering commitment to the highest level of integrity and ethical behavior. To help ensure our research and analysis are rigorous, objective, and nonpartisan, we subject our research publications to a robust and exacting quality-assurance process; avoid both the appearance and reality of financial and other conflicts of interest through staff training, project screening, and a policy of mandatory disclosure; and pursue transparency in our research engagements through our commitment to the open publication of our research findings and recommendations, disclosure of the source of funding of published research, and policies to ensure intellectual independence. For more information, visit

This document and trademark(s) contained herein are protected by law. This representation of RAND intellectual property is provided for noncommercial use only. Unauthorized posting of this publication online is prohibited; linking directly to this product page is encouraged. Permission is required from RAND to reproduce, or reuse in another form, any of its research documents for commercial purposes. For information on reprint and reuse permissions, please visit

RAND is a nonprofit institution that helps improve policy and decisionmaking through research and analysis. RAND's publications do not necessarily reflect the opinions of its research clients and sponsors.