Patient and Caregiver Engagement in Guideline Development
Goal: To develop the RAND/PPMD Patient-Centeredness Method (RPM) - a new online scalable approach to engaging patients and caregivers in the process of developing clinical care guidelines.
Participants: 95 individuals with Duchenne Muscular Dystrophy and their caregivers.
Funder: Patient-Centered Outcomes Research Institute.
Publications: Article (JMIR Research Protocols), Article (Medical Decision Making), Article (The Patient - Patient-Centered Outcomes Research), Article (European Journal for Person Centered Healthcare), Article (European Journal for Person Centered Healthcare)